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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Sydney, AU

Hi all, I’m after some reassurance that I’m not totally crazy. I’m two weeks post lap for a 10cm cyst in my right ovary. During surgery they inserted a mirena iud to control endometriosis symptoms. I’m stage 3-4 and have a follow up on the 30th. The past three days I’ve been getting unbelievably painful cramps. I’ve never had children so I don’t want to insult anyone that’s had terrible labour pains, but they honestly feel like contractions. It starts off as bad period pain and then intensifies… read more

April 19, 2018
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A MyEndometriosisTeam Member

Yeah, I was hoping with all my heart it would work because it was such a good idea behind it. Unfortunately not everything works for everyone, I've since tried 4 other treatments in tablet form just to find the perfect one for me. In total I think I've tried 8-9 different treatments and think I've finally found a combined pill that works. The best thing I found for finding treatment was going to an endocrinologist to assess my hormones and pick the best hormone meds for me, she was amazing and literally knows every possible drug I could take to help and has promised to find me the perfect one. I hope the mirena pain calms down for you though ❤️

April 25, 2018
A MyEndometriosisTeam Member

Thanks for your feedback guys.
I won’t pull the plug too early but no point in putting me through this if it’s not working.
I’ve been told to see an endocrinologist too, so maybe that’s a good start! Thanks again x

April 25, 2018
A MyEndometriosisTeam Member

Right, that makes sense. I just don’t know how long I should be putting up with it. I just don’t know if any other treatments that work as good to stop endo. Definitely don’t want a hysterectomy yet

April 25, 2018
A MyEndometriosisTeam Member

I had the same thing, I put up with it for 5 months and I couldn't walk for majority of those months because walking triggered the contraction like cramps. I eventually had to get it out and haven't had pain since, upon consulting a few different doctors about it it's a common thing for women who haven't had children because our uterus' are smaller.

April 23, 2018
A MyEndometriosisTeam Member

This exact thing happened to me - unfortunately, it lasted a solid 6-7 months. Then it calmed down, and now it lessens the frequency of my period, as well as the length and flow. I still get pain attacks like that every few weeks at this point, but I think that’s the endometriosis at it’s finest.

April 19, 2018

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