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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Saint George, UT

My body does not handle birth control bad side effects. The obgyn i saw today gave me a pamphlete on lupron telling its not at all like birth control and will shut down my ovaries. And there is nothing else they can do other than that, or get pregnant and they can not do partial hystorectomy because i got ovarian cysts before having endo and that i would keep getting ovarian cysts even if they only removed the uterus. Which wad tilted onto the ovary that the cyst ruptured was on and could do no… read more

July 19, 2018
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Answer Summary

Members shared deeply mixed experiences with Lupron for endometriosis management, with some finding it their only effective option while... Read more

Members shared deeply mixed experiences with Lupron for endometriosis management, with some finding it their only effective option while others experienced severe side effects like relentless headaches, hot flashes, insomnia, and emotional distress that led them to stop treatment early. Several members emphasized the critical importance of taking an add-back medication to protect bone density, keeping a daily symptom diary, and understanding that once injected, Lupron stays in the body until it naturally runs its course, making shorter injection intervals (monthly rather than quarterly) preferable for maintaining control. A recurring theme was the value of thorough research and exploring all alternatives first, including excision surgery to remove endometriosis tissue and hormone treatments like Visanne, which some members found more tolerable than traditional birth control.

A MyEndometriosisTeam Member

Excision is usually the best bet so it removes the areas of endo but it can grow back a hysterectomy does nothing to remove the actual endo I’ve done lots of research on it

July 20, 2018
A MyEndometriosisTeam Member

Lurpon puts you into a "reversible" menopause but I beg all women to do a LOT of research before taking this. You will have to take adback with it to stop bone density and the side effects are completely terrible IF you get them. It's also used as chemo on patients that have colon cancer. I took it for a month (was supposed to be 6) and got terrible headaches, hot flashes, didn't sleep more than 5 minutes at a time and cried nonstop. It wasn't for me.

July 19, 2018
A MyEndometriosisTeam Member

Is visanne an option for you? It’s technically not birth control, however is a hormone pill. A friend of mine, like you, does not tolerate birth control well at all and has tried everything imaginable. Her dr finally put her on visanne and she loves it! I personally was on visanne as well and it worked well, I would never try Lupron.

July 20, 2018
A MyEndometriosisTeam Member

Yes, You will need to take add back to help reduce chances of bone density as Lupron is terrible for your bones and body. I also recommend when you start the shots, write in a diary every day and all the symptoms you are showing. Once it's in your body it will be there until it runs it's course. if you think you've had enough because of the symptoms you have/side effects, you do NOT have to finish it out.

I was signed up to take 1 shot each month for 6 months. I would ask about that, that way you have more control? I only did 1 month before backing out.

July 20, 2018
A MyEndometriosisTeam Member

I was told lupron is only good for 6mnt. I start my first session next mnt 1 shot for 3mnts and the next one 3mnts after

July 20, 2018

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A MyEndometriosisTeam Member asked a question 💭