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Hi I was put into menopause last year with decapeptyl. Wasn't too bad except for bad joint aches and pains which has only recently worn off. And migraines. If I had a hysterectomy would the side effects be the same as from an injection does anyone know? Am not sure if I can have HRT x
Answer Summary
Members shared their experiences comparing chemically induced menopause (Decapeptyl, Lupron) to surgical menopause after hysterectomy, with... Read more
@A MyEndometriosisTeam Member hey girl! I’m on the estradiol transdermal patch it’s actually a pretty low dose (0.1mg/day) and so far I don’t have any issues with it at all! My surgeon said she has seen better tolerance with the patch than pills, plus the dosage is lower so the risks are less. I have heard black cohosh is a good natural hormone replacement. I’m hoping to eventually go to something like that myself as I too worry about HRT and longtime use! But as of right now, I’m doing well! Aside from the expected surgical pain (and nausea) I can’t complain too much! No headaches, joint pain, hot flashes, nothing!
@A MyEndometriosisTeam Member...Holy shit, where to begin? You have already been through HELL, so menopause "ain't nuttin' but a thang". BE VERY CAREFUL with the HRT=0
As I've said to both you and Nicole, when adenomyosis is riding shotgun with endo...a HYST/BSO with excision is your best option. Bowel involvement makes both your cases even more dire. I think Nicole is doing okay. I need to post a wellness check.
Removal of uterus will rid the adeno and of course, end your period. (YAY) Removal of the ovaries, which "feed" the endo, will instantly put you into surgically induced menopause. Those symptoms vary from one woman to the next. I was 33 and didn't have a fucking clue, so mine was a horror story. I was promised miracles through surgery that never came to fruition.
Yours will be different, hon. You are older and wiser at 39, with Oli at your side. He will keep you distracted and motivated, which will help with the emotional rollercoaster. You will be freed of the pelvic "heaviness" and monthly bleed out. That should help you so much physically. Ask for help if needed. I didn't. I wish I had. I felt like I was losing my mind, now in retrospect...it was situational. I had no support whatsoever and my hubby went rogue. Who wouldn't lose their fucking mind?
There is so much more info now than I had 25 years ago. There are products for the vaginal dryness, but vaginal/rectal prolapse remains a reality for some. SO...Be cautious with lifting (even laundry) as your pelvic structure will change immensely. I wasn't. I distracted myself with man-sized projects and home remodel...lifting WAY more than I should...still do. I did a lot of damage to myself.
I was/am unable (forbidden by oncologist) to take HRT...not even bioidentical. Again, everyone is different. Our hormones can be friend or foe. Losing them forces us to readjust so many aspects of self. You're a strong woman. You can do whatever it takes.
My best advice would be to listen to your own body. Your previous surgery didn't kill the beast. You've got to go hard in the paint now, IMO. Find the best excision team available to you, including colorectal. I would never again let them remove my parts vaginally. I truly believe that's what caused my endo to explode into infinity. You will need a minimum of 8 weeks recovery, with a year or two adjustment period. The hot flashes were a BITCH. Some women are lucky enough not to have them...not me=0 Seek a therapist if you feel mood swings. That will help you to navigate the highs and lows. Don't be ashamed to take a prescribed med for anxiety or depression.
Hopefully, once you are rid of physical pain, you can focus your newfound strength on a bright future. Certainly, it will be a more manageable quality of life.
"Take this pebble from my hand, grasshopper!" You've got this. We've got your back=D
Thank you SO much both of you. I think getting together a post-op plan is an absolutely cracking idea. I think I did kind of just get it done then thought that would be that last time...but I could have helped myself more for sure. I will look up visceral manipulation, also have contacted a naturopath too and have a book (unread..) here on the endo diet, anti inflammatory. OMG not long for you now Sarah! Baby in the right position and everything? Oli was completely breech, 'as breech as you can get' apparently..he had to be forcepped out of my stomach and rib cage..he wan't going anywhere..avoid C section at all costs, you know all this.But good luck and keep us posted xx
I did read some of Nancy's files and a lot of it did strike a chord, mainly about the surgery not being the quick fix we all hope for. I am going to be really committed next time as it will prob be my last shot at it for a long time. She did also say that she thinks the joint aches and pains were more side effects of the shot, really hope so. Am going to really invest in my after care this time. It does seem like common sense but I do need someone to tell me to do common sense stuff sometimes!
My mum is doing really well thank you, it was 6 years ago now and Oli appeared the following year so he was a bit of a gift for us both as she always wanted a grandchild!
Yes am seeing the original surgeon :( the top one who dismissed me and made me wait 14 months for a lap, when some ladies I know waited 6 weeks :( . Am taking a friend with me this time, so am hoping it will go better and I will actually get to ask questions this time. Normally I just get told how I am and how I'm doing..not even joking! This will be the first time I've seen his since December though...big sigh!
Am feeling strangely positive though, I've never felt like things were really resolved which is why I kind of gave up around March with the diet and everything, it just felt like a lost cause again. But am going to get it all sorted this time :) xxx
To follow up with @A MyEndometriosisTeam Member last post the treatment my osteopath performs is called visceral manipulation if you wanted to look up a practitioner in your area who is trained in it. They aren’t always osteopaths, sometimes physiotherapists are trained in it as well. I would highly recommend it post op!
That's amazing! General consensus seems the injections are much worse than going in after hysterectomy which is reassuring. That's great you can manage it naturally too, As usual I cant make plans because they will just see what's what when they get inside, they're ti try to save the ovaries,despite one is diseased and the other is tethered hmmm..! We'll see but that makes me feel more open to losing themxxx
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