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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Macon, GA

I have not been diagnosed, but from what I have read I think it is endometriosis. My periods have became excruciating over the past couple of years. Feels like labor pains. I am 46 and have 3 children. The pain is low back, hips, groin, thighs and more recently nerve pain down my left leg. I know I have cysts sometimes. Usually day 2 is when it starts. Day 4 I am starting to feel better. My periods are moderate to heavy with clots. Does this sound like Endo? And what is most important… read more

November 12, 2018
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Answer Summary

Members validated someone's concerns about potential endometriosis ahead of their first gynecologist appointment, confirming that excruciating... Read more

Members validated someone's concerns about potential endometriosis ahead of their first gynecologist appointment, confirming that excruciating period pain with clots, back and leg symptoms could indicate endo, adenomyosis, or fibroids. Several members shared their own diagnostic journeys, emphasizing that endometriosis can only be confirmed through laparoscopy, describing how fibroids were often discovered first via ultrasound or MRI before endo was found during surgery, and recommending resources like Nancy's Nook on Facebook for questions to ask doctors. A recurring theme was the importance of advocating clearly for all symptoms to avoid being dismissed, the relief of finding a doctor who listens and takes time during appointments, and the value of community support when navigating confusing and overlapping conditions.

A MyEndometriosisTeam Member

It does sound like Endo. Could also be adenomyosis. I recommend searching for Nancy’s nook on Facebook if you aren’t already on there. It’s not a support group but it has a lot of good resources including questions to ask your doctor. You have to agree to the rules before being admitted.

November 12, 2018
A MyEndometriosisTeam Member

No problem! That’s what we are here for. To share our experiences and answer questions. Good luck!

November 17, 2018
A MyEndometriosisTeam Member

Okay. Thank you. That helps tremendously. The hsg scares me. I will beg to be put to sleep. Lol
My us is dec 12. I will let you know what it shows. Thank you again

November 17, 2018
A MyEndometriosisTeam Member

So it all started when I was 23 I had really bad periods so I went to my gynecologist to see what was up. She did an ultrasound and saw nothing. I had heavy periods, spotting in between periods and really bad cramps (it might of already been my endo I just didn’t know about it at that time). Periods got heavier so I went back 6 months later to a different gynecologist and she said I had fibroids. She wasn’t specific on location or size. She just said it was 1 fibroid. She said she couldn’t do anything about it and to just wait and see. I went to a different gynecologist 3 months later and he performed an ultrasound and said I had a big fibroid. He ordered a HSG test but they weren’t able to perform the test because I have cervical stenosis. So the next step was a laparoscopy to see the exact location of the fibroid. The idea of a laparoscopy scared me so we did an MRI instead. They were able to detect 3 fibroids.

November 17, 2018
A MyEndometriosisTeam Member

I meant to ask you, how did they find the fibroids? Did you have to have a hysteriscope or any other procedures before the lap?

November 17, 2018

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