My last excision surgery was in August of 2016. Six months later, my pain was back in full force. It's not the same for everyone, though. Some women have one excision surgery and do lupron treatment, and they never have pain again. I was diagnosed with endo almost 16 years ago, and I've had 5 excisions by specialists. I've done lupron, dozens of different birth control pills, mirena iud, pelvic floor physical therapy, diet changes, and my pain has always come back. I finally had a hysterectomy (kept my ovaries - didn't want to go into menopause at 38) a week ago today. My surgeon said after she removed my uterus, she had to remove "wide strips" of endo and scar tissue from the bottom of my pelvis, in the posterior cul de sac (area between the uterus and the large bowel). I refuse to do Lupron treatment again, because I had unusually severe side effects from it. I may try another medication called letrozole. It seems a lot of specialists are unaware of letrozole as an option for suppressing hormones for endo treatment. The reason why Lupron has such horrible side effects is due to the fact that it works directly on the central nervous system to suppress estrogen. Letrozole works more directly on the ovaries, so the side effects are less severe, less wide spread. Letrozole is in a class of medications called aromatase inhibitors, if anyone is curious and wants to read up on them. I hope your surgery provides you with long lasting pain relief I know you need. Sorry this was so long. Hugs and prayers.

I had mine done in August and I am still dealing with the pain it varies with different people depending on how your body works

Hi Melrose,

You did the right thing by having the surgery. You will see relief. From now on, it's up to you about how much stress you want to put body through, lack of sleep with affect it too, what you eat, stay away from alcohol and coffee, I've found decaf and one cup a day is what I need to have sanity..... I've had abused coffee to stay awake so I can manage my work load. I didn't change my lifestyle and continued the same things that brought me to have the surgery and I believe we will always have pain..... I just have more things on top of it and really can't manage....please be aware that yeas infections and UTIs you may get, out defense system is taxed.... I have both....haven't been able to get rid of.... I found out I have group strep b vaginally. I want to feel better and so I dress up. I make sure I spend time with my family even though they drive me crazy. I don't have patience for anything or anyone and really can't focus well...it is centered around my pain. So there you have it......watch what you eat.....let in people who bring you up not put you done and if you need anything please let me know.....Im thankful God gave me this because I'm finally understanding life.... I'm here to serve others. Right now, I'm with my family, I'm on a medical leave, who knows what's going on inside I put on weight and I'm in a pickle about whether I should push for surgery....it is the inevitable ......I love my daughter and husband and they don't want to see me this way....I try so hard to not talk about my health but I tired them out......it's if you think you're alone. You have to ask yourself who is in control. I haven't found a way to balance things in my life and right now my body is under attack...... I hope I'm doing what it needs.....I was in a better framein in 2016. Please put yourself first this isn't a small matter....it can take over your body including emptions....please no hormones pills.....do whatever makes you happy..and exercise I was told. I'm having mobility problems especially leg pain.. Please watch your weight that will be a good sign of what's happening inside.....I have fibroid or growth on uterine wall and have pain across belly button.....I also had hernia on left and burning now..... I don't know what to do.......anyhow.....I will do something when I can't tolerate the pain anymore

I had a diagnostic lap in March of this year. The pain never went away completely. Doctor had me try BC, but no relief. I started seeing a pain managent doctor (initially for my back, but now for endo too) and he has me on norco 5mg three times a day. Sometimes the norco helps. Gyno wanted to start me on a new med for endo, but I said no because I was trying to enroll into a med study for endo. Well, part of the screening process is different tests which included an ultrasound. Well, they found a chocolate cyst on my right ovary which disqualified me to participate in the endo study. So, this friday I see my gyno to see what we’ll do about the cyst and to get on that new med she was telling me about. And I have to talk to my pain doctor about dosage change on the norco because its barely enough pain relief. Heating pad helps sometimes — mostly not, but I gotta try everything I have.

Hope you find relief!!!

HI this is to Endo regrowth post lap,

You did the right thing by having the surgery. It's a major relief for me. It was the pain on side that when I leaned into the medicine cabinet to put make up on I felt the bulge. I watched everything I do after the surgery. I did whatever I could. Truly I wasn't up to a lot because body wanted to rest a lot. Went back to work and found I couldn't stand on legs like before and numbness was coming and going especially left leg. I had to hydrate mostly after work because I found myself constantly going at work so I did whatever I could. I deal with UTIs....I know what to do and not to do...but still getting them. I couldn't handle salt, spicy foods, dairy, breads, pastries, and coffee. I drink decaf, must cut sugar.....sugar and alcohol cause pain....even pasta sauce but you have to live....I did put on a lot of weight after surgery and truly it is the problem for me. I do have a leiomyoma on uterine wall, lesions on ovaries after surgery and urinary retention.. I knew there were risks and I did my best to prevent this but I'm dealing with it providing my doctors hear me. I wasn't getting a lot of sleep. I did go to ER after 8 months because a cyst ruptured and went back because I had a fever and only then did they put me on antibiotics for UTI. I'm having issues now and I believe it's an aftermath of the surgery. I had a panel of blood work before having the surgery and all doctors cleared me for the surgery. I couldn't deal with what I had before the surgery. Now. I'm dealing with issues but they are similar but not as urgent as before. Im hoping I can manage my symotors without steroids, BC, and anti inflammatory meds. I'm in pain and my family doesn't want to hear nor see me this way. They were expecting surgery would solve a lot. It did take care of the urgent and emergency matter. I will always have to be careful with everything I do. I have become more aware and tend to my body now which I pushed through it before. I don't know why I have BPPV and blurred vision. I do have a lump on neck and believe it's from shots I took to help with upper back and neck pain. I refused them last 2 visits. I don't well and constantly tired
I do things because I have a 12 years old that doesn't need to see me this way. I have to no matter what. I've explained to my job my dizziness is preventing me from returning. I'm in constant battle with myself about how did I let this happen. I know things are out of your hands at times. I'm sad may have said depressed and anxious. It's normal be in this stage but I'm not taking anything for it. I need to tell doctors what my body is telling me and I feel meds will only cover it. I seek prayer to be my medication. I'm not all there. I have a lot of healing and learning to be on my mission. Please enpowr yourself. I believe one day the world will look at endometriosis with different eyes.