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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question πŸ’­
Long Island, NY

12 days post first lap where I had extensive disease removed. I started norethindrone 4 days ago and I have been having severe cramping. My surgeon thought maybe I’m constipated from surgery so I’m doing a bowel cleanse and it is not improving my pain. Has anyone suffered such severe cramps within days of starting norethindrone? If so, did the cramping ever pass? I want to give this new med a try as no other forms of the pill have worked for me.

February 12, 2019
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Answer Summary

Members responded to someone experiencing severe cramping just days after starting norethindrone following excision surgery, with most... Read more

Members responded to someone experiencing severe cramping just days after starting norethindrone following excision surgery, with most agreeing that the pain was likely related to post-surgical recovery rather than the medication itself, especially given the early 12-day post-op timeline. Several members offered practical advice on managing post-op constipation with gentle options like Miralax and raised concerns about the lack of adequate pain management and follow-up care from the surgical team. A recurring theme was frustration with doctors who don't listen to their patients' concerns and the challenge of distinguishing between normal post-surgical discomfort, menstrual cramps, and complications requiring intervention.

A MyEndometriosisTeam Member

I know! Plus ive been runnning 99.9 while taking tylenol. So i went in yesterday to get antibiotics which was the right thing to do. Got antibiotics and they told to see a pain specialist. I am so happy i did. I saw dr.patel today who has an office on long island and nyc, she was fab. She understood and listened to the different types of pain im having from recovery and from the spot on my diaphragm they left. Tomorrow is a new day, hopefully a more tolerable one:)

February 21, 2019
A MyEndometriosisTeam Member

That is SO not right! May I suggest going to see Dr. Kreitzer and his PA at Upper East Side Pain Medicine? Do NOT see Dr. Samuelson or Dr. Thomas.

Or I suggest going to Beth Israel Medical Center's Pain Management Clinic?

When we are in pain, our bodies don't heal. Shame on Tamer Seckin and Dr. Liu.

February 21, 2019
A MyEndometriosisTeam Member

Isn't it frustrating to have a doctor who doesn't listen? My goodness! Anyone doing a bowel cleanse would have pain. That is insane. Whst are you using to cleanse your bowel? I have found Miralax to be the best. It works slowly. I suggest 17 grams (one capful) in a drink of any sort to start. Or perhaps 1 1/2 capuful. It's gentle and softens the stool.

February 13, 2019
A MyEndometriosisTeam Member

Oops! Those broken hearts are supposed to be the theseπŸŒΉπŸΎπŸ’–πŸŒΉπŸΎπŸ’–πŸŒΉπŸ’–πŸΎπŸŒΉπŸ’–πŸΎπŸŒΉ

February 22, 2019
A MyEndometriosisTeam Member

I am so happy I could sing!

Please tell me again why the endo on your diaphragm wasn't removed. Seckin should have had a thoracic surgeon to remove it.

So you know he used to be a better endo excision specialist on Nancy's Nook but was removed? I don't know why but have a hunch.

πŸ’–πŸ’–πŸ’–πŸ’–πŸ’–πŸ˜˜πŸ’”πŸ’”πŸ’”πŸ’”

February 22, 2019

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