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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 29, 2020
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Answer Summary

Members shared deeply personal experiences about asking for emotional support while managing endometriosis pain, with clear communication... Read more

Members shared deeply personal experiences about asking for emotional support while managing endometriosis pain, with clear communication emerging as essential since the condition is invisible and partners or family cannot always understand without being told directly what is needed. Several members described relying on trusted friends, partners, or family who listen without judgment, check in regularly, or simply offer presence and distraction during painful episodes, while others expressed profound isolation when loved ones dismissed their pain or failed to believe them. A recurring theme was the importance of finding people who truly understand, whether through personal experience with illness, the online endometriosis community, or simply those willing to show up consistently with empathy and care.

A MyEndometriosisTeam Member

It can be hard to become so vulnerable and ask for help when you feel like your experiencing endometriosis pain. I like to tell my partner exactly what I need at that time, she can’t mind read and I know she sees my pain. I feel as though just telling them you are hurting can help ease the question on why you might be more quiet or tired or frustrated. Endometriosis is invisible to the naked eye and so communication is a hundred key in asking for help and expressing what you may need in the time of an episode or even in between (on the good days)

October 29, 2020
A MyEndometriosisTeam Member

Unfortunately, no one in my family is supportive when it comes to my endometriosis. I rely a lot on my best friend, but I think if you can it's good to have more than one person to go to for emotional support. You can try group therapy or online therapy as well.

October 30, 2020
A MyEndometriosisTeam Member

I find that when you are in the most pain you become extremely vulnerable, it’s important to reach out to the people you trust and can feel assured that they love and respect you and understand what you’re going through.

October 29, 2020
A MyEndometriosisTeam Member

My sisters and mom always can tell when I'm in pain because I have a tendency to shut people out when I'm hurting. I don't text them or anything. I don't like to tell people (anyone);that I'm in pain because I don't want them to feel bad or treat me differently because of it. I get really silent

November 5, 2020
A MyEndometriosisTeam Member

I have a couple of friends who are amazing. When I need comforting I just message them to say I'm having a hard time, and I need some hugs/inspiration/love/a listening ear etc. They always come through for me. They don't ask questions, but sometimes when they respond by saying they're there for me, or sending me a little something (they don't live near). That sometimes opens me up and it helps to share what I'm going through with someone non-judgmental.
But just knowing they're there for me when I need, is a huge comfort. And I try to always be there for them too.

October 29, 2020

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