Connect with others who understand.

sign up log in
About MyEndometriosisTeam

Connect with others who understand.

sign up log in
About MyEndometriosisTeam
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Experience With Endo Impacting Nerves?

Does Anyone Have Experience With Endo Impacting Nerves?

A bunch of endo was removed from one of my uterosacral ligaments, and elsewhere, in my third lap last month.
However, I am still having pain in the bowel/sciatic nerve area. My pelvic floor pt has determined that the pain is not related specifically to my pelvic floor.
Besides hot baths, otc pain relievers, and stoof softeners, does anyone have any advice for dealing with this kind of nerve pain? I have an appointment with a Nook surgeon in June, but that’s a long time from now…

A MyEndometriosisTeam Member said:

I just got a tens machine- I got a cheap one off of Amazon but I know a couple of expensive ones are heavily marketed to the endo community. It won’t get rid of pain but you can add it to your list of things to use. It does help me some, and I like it for days when I have to force myself to be mobile and can’t take my electric heating pack everywhere.

posted 6 months ago
A MyEndometriosisTeam Member said:

Have you tried something like the Livia? https://mylivia.com/about
It is like a tens unit if you know what that is? You wear these little stickies and it attaches to a little control sqaure. It sends little micro pulses (like stimulation kind of). I have nerve damage from a botched endometriosis surgery. I use this for pain in my hip/abdomen/lower back, etc. The pain I have DOES flare up sciatica like symptoms in me. This is the only thing that can give me true relief, and for hours if I wear it that long. It looks a little expensive, but I've been using this for multiple years, even before the damage, and it's the most helpful thing I've ever tried.

posted 6 months ago
A MyEndometriosisTeam Member said:

Until you get better answers, you could try PRT (pain reprocessing therapy). It takes a while and obviously won't fix actual structural problems in your body, but since you're waiting until June could be helpful? Some people have a reduction of pain. https://www.painpsychologycenter.com/how-it-wor.... There are a few books out there and the curable app works through this process as well.

edited, originally posted 6 months ago
Already a Member? Log in