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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Deal With The Comments From People Who Don't Understand Your Diagnosis?

How Do You Deal With The Comments From People Who Don't Understand Your Diagnosis?

I live in a third world country where there is a lot of meddling from everyone in everyones lives, sometimes they mean well, other times they just want to know peoples business just because. When I tell people about my endo I usually get a lot of "oh, so and so had the same thing and she drank this and got cured" "if you just pray everything will be ok" "you're just too focused on the negatives". How do you deal with these comments on a daily basis? I know I'm not supposed to let them get to me… read more

A MyEndometriosisTeam Member said:

Im Here In America, I Can Only Imagine How Hard It Could Be But I’ve Learned To Not Respond Or Tune Them Out When They Start Talking Because At The End Of The Day…… They Are NOT Docotrs Nor Can Tell You How You Feel/Should Be Feeling! Only YOU Know How YOU Are Feeling At That Moment.🤗

posted 16 days ago
A MyEndometriosisTeam Member said:

Hello, I am from a third world country too, I think there's people like this everywhere. From new age people who think "you manifested illness by being negative" to people who think that praying can cure you. I don't know where you are from but I think generally in the west people are less used to talk about illness and death. It is a taboo. Also, traditionally illnesses that affect women's bodies, specially our reproductive system are ignored. That's why it's sometimes hard to get a diagnosis for endometriosis. There's a cultural belief that women are exaggerating, looking for attention or even being hysterical. I think this happens worldwide. I'm from LatAm and religion is very very deeply ingrained into our culture. I have received very ignorant comments about my illness, how I should think and feel about it and what it represents of me. The biggest advice I can give you is to create a strong support system with people with similar beliefs than you. Not everyone will validate your experience, it's sometimes very painful but we can learn to believe and defend ourselves. I send you a big hug and if you ever want to talk I am open to it. Big part of facing a diagnosis is the emotional and psychological pain it causes, stay strong and trust yourself.

posted 16 days ago
A MyEndometriosisTeam Member said:

I might steal the Google it part, it sounds like a good way to end the conversation

posted 8 days ago
A MyEndometriosisTeam Member said:

Hi fam, yaah l know how much it hurts to have people gaslighting your pain and feelings, what you just said now ladies I too have heard such comments. At first they use to get to me, but now I ignore them, and I just remember "you will never know how one person feels until you work in their shoes". Now when people ask i just say Google it then after we can have the conversation 🙄.

posted 9 days ago
A MyEndometriosisTeam Member said:

Im from LatAm as well! And yes, here religion is so deeply rooted in everything that having a conversation without someone suggesting prayer might be the only answer is very very hard. Im not against it, but I do feel like there are certain things that cant be fixed just by that.

Thank you so much for your support, I would really like to keep talking to you if youre genuine about your offer. Like I said previously, I dont know anyone going through anything similar near and would love to have someone who understands to talk to

posted 16 days ago
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