This is a major challenge that I am sure we all endo sister's face. For me its heartbreaking when I lost all my friends, like all and most family members at age 15 when I was diagnosed. No one cared to understand, to learn about endo..
As life progressed, I stood with my mental positivity, faith, my husband and son and faced it all by myself.
People, no matter who they are, if they dont truly love you or honesty care, they will always be negative with their words, treatment and demeanor towards you.
Sorry that you had to face this but know that you are not alone.
I stand by you, with you and we will all live and get through our days.

I deal with the comments as well. Some people try to explain what their relatives have been through and how surgery is the cure. Everyone isn't the same and "technically" there's no cure. Others look like they don't care and others just don't understand, they compares it to having a regular cycle. I also get tired of explaining or trying to explain that you can hurt without having a cyle. I get so frustrated and hate really telling people, at times, what I have and what I'm dealing with. Oh, and some people stressing that they family members have severe endometriosis, under minding my endometriosis. I get there are several stages and symptoms, but we all have pain in common.

Hi dear. Sorry for that.Me and I decided to live my own ways and I don't attend family functions . Because am the last born of seven since my entire life am ever in pain and my family has never understood endomyosis and endometriosis .I love my family where am born from but I got tired telling me I don't loose weight I don't get better.Though some functions like when I lost my Dad for us in Uganda people attend many and I had spent by then 6yrs in marriage and my son was just four years every one was asking me when am producing my second child .Even now my husband's mum and his relatives asks that my son needs a sister.yet am struggling with my life even to see how I can Carter for my small family.my mum is now 77yrs our elder sister told her that my tummy is bigger because of fats I explained to my mum still she couldn't understand how my uterus is bigger and the endo is eating me up atlst every day she calls me to find out though I have to pretend am fine. Not to scare her.I wish my country comes to understand about this silent killer it's known by a few pple.

It is so frustrating and tiring just dealing with people who dont understand that Endometriomis and other that are an invisible illness chronic disease can only be seen from surgery inside and that the fact no cure and laposcopy surgery is the only way to remove Endometriomis but it does return. Having many surgeries like I have and others causes adsions aka scar tissues. Along with GI ibs symptoms, anxiety/panic attacks and depression.

I tell people who make ugly and hurtful remarks. Ask them are you dealing with Endometriomis every day? They would say no? How do you know what I am going through.

I use the quote from Couples Retreat When Dave was biting by a shark 🦈 more like nipped and he needed a band-aid. He says he is a shark survivor.

We are an Endometriomis survivor dealing with symptoms that change every hour to mins of the day.

Our bodies are unpredictable and no you are not alone.

We are here to help and support and just make it through the day.

Being misunderstood it is so hard and you are already in so much pain and their comments make things way worst. One of my favorite way to respond to ignorant people is have you figured out a way to switch bodies? Oh no then you have no right to comment because only I really now how much pain I am really in. And when I was missing work every month for 10 days for 2years some of my coworkers used to say "how was your vacation. When I came back and I always told them I would rather be working then go through Endo flareup any day. Honestly some people they just don't get it and it is painful to lose friends that you thought were there for you but if they turn out they are fake friends it is better to not have them in your life at all. True friends they will make an effort to understand they will ask you what you need and try to educate themselves about the pain. It is not your responsibility to keep convincing people that you are justified to stay home or in how much pain you are in. And honestly if I wouldn't be diagnosed with Endo I would miss out on this amazing community of Endo warriors some of my best friends I have in my life I met because of Endo. So if you have no understanding in your circle of people I will tell you you are not alone and you can always reach out and lastly stop masking your pain feel what you feel don't minimize it because other people think you are faking it. You have no idea how strong you are the amount of pain and other symptoms we go through it is not normal I had my laporoscopic surgery 14 days ago and it changed my life but I was in the recovery room with other women's that were operated for the same thing and the nurses kept asking if we need some pain killers because of the stitches and most of us said what pain this is nothing in comparison with our usual level of pain. You are a warrior so don't allow others to steal your power with their ignorant infuriating comments. Keep fighting 💪💓