The gaslighting you receive from drs . They don't believe you and half the time they don't understand endometriosis.

The fact that drs are not fully educated in Med school about endometriosis and many do not take time to research it further even when they have a patient that suffers from it. Also, that many (not all) drs gaslight their patients that suffer from it and label them simply because they themselves don’t suffer from nor understand the condition.

I wish people talked about it freely, and others tried to understand. I used to be a fun upbeat person. Now, I'm flakey, depressed, overwhelmed all the time, exhausted(which is an understatement), can't have a good physical relationship with my husband, and I never want to leave bed.
I wish it would be researched more and finally decided that it is an autoimmune disorder. Then we could all (maybe) finally be taken more seriously, and be able to get disability, if we need it, or get the care we all deserve.
Women's healthcare is B.S. we are expected to tolerate everything better than men, we are just being dramatic or crazy, or we just want drugs. I work in healthcare and the stigma drives me crazy!
That's what I want.

The absolute, whole consuming, life affecting fatigue. Going to bed and waking up just as exhausted

I feel like anyone who has endo and even though don't experience the pain like others do should get and whole CAT scan of the body. I didn't know Endo could spread to the brain and Eyes and the fact that these Doctors don't discussed this with there patients is crazy to me. We need a whole evaluation. That way we know what we are dealing with from head on.