I Had A C-section After My C-section They Pulled Out A Big Piece Of Endometrial Tissue From The C-section Line | MyEndometriosisTeam

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I Had A C-section After My C-section They Pulled Out A Big Piece Of Endometrial Tissue From The C-section Line
A MyEndometriosisTeam Member asked a question 💭

After my robotic partial hysterectomy I am noticing a painful scar tissue forming from one of the wholes from surgery I am also having trouble pooping properly any recommendations?

posted August 24, 2023
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A MyEndometriosisTeam Member

I am going to the mayo clinic for help, if you have not check them out. They are supposed to be the best. Wish I had gone there years ago...

posted August 26, 2023
A MyEndometriosisTeam Member

I am so sorry that you had to go through all that and that no one helps you…I have both internal and external endo I have it on my C-section. And inside of me every time I would bleed the pain was unreal from my first period until after a partial hysterectomy…after my robotic hysterectomy I’m noticing a endo scar tissue growing on the line from hysterectomy and it’s causing pain and problems pooping and cramping they have put me through colonoscopies abd everything I tried to explain it’s on the outside not inside they don’t get it it’s so frustrating that the treatments make it worse any surgery they do it grows back worse and I was on the depo shot for two years and it did not stop the bleeding abd I was in so much pain that’s why I had a partial hysterectomy at 26

posted August 25, 2023
A MyEndometriosisTeam Member

I was diagnosed from my mom's gyn when I was 10, I got lucky with her, she began me on B.C, but it never really helped till I was on without any break, but I still had break through bleeding, as I got older the worse I got, the longer I was in pain, when I was 19 I was put on a deposit shot to put my body in menopause, that one sucked I gained weight, still had break through bleeding, every time I bled the pain was back. And I had stupid idiot dr. 5 males 1 female tell me even at 18 get pregnant it will put your endometriosis into doement....uhm. when I got married at 21, pregnant later that year at 22, then I hit 5 months pregnant I began getting into so much pain, low abdomen, each week as he grew the pain got worse by time I was 6 months, I was in total misery I was in and out of the e.r a few times a week, I was on oxycodone. If someone had told me prior, get a laprascopic to remove all adhesions I might have been OK, but even so, the endo grew fast and horribly. For the last 3.5 months and even went into labor 2 months prior to his birth. A night mare I tell ya, a night mare. This has been 31 of pain and 38years of chronic nausea and vomiting like morning sickness. Not to mention mis treatment.from drs. E.rs, even Ins. And people. My whole life controlled by this/these diseases, and gone never got to really live. Still done even after 2 surgeries to give me a full hysterectomy. 7 surgeries in total, last in 2021. I was given botox too, that was the best things ever, 220cc's, but all used, most in the worst areas, my lower left the rest through out. I tried getting this surgery and botox again 3 months ago, but he left the state to work for the VA and his fellow thinks she was going to tell me I was going to do pelvic floor PT before seeing her, absolutely not. Nope. So currently hoping the mayo clinic can/will help. It's never gone. Not till we fix the damage/I'll gland/genetics within ourselves, but need the help of family members to do it too.

posted August 24, 2023
A MyEndometriosisTeam Member

Also even gabapentin has helped me in every way. Even pain

posted August 24, 2023
A MyEndometriosisTeam Member

Easy laxative. Mralax, dulcolax

posted August 24, 2023

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