Side Effects Of The Mirena? | MyEndometriosisTeam

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Side Effects Of The Mirena?
A MyEndometriosisTeam Member asked a question 💭

My gynaecologist has advised me that my endo is stage 4 with significant growth infiltrating my bowel. She has told me that she does not think surgery is a good idea as they will need to also remove part of my bowel. She has advised that at current the Mirena is my only viable treatment option
I am horrified as hormonal birth control has always wreaked havoc on my body (weight gain, mood swings, depression)
I’ve never tried the Mirena but I’m terrified of the side effects.
I had the copper… read more

posted November 22, 2023
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A MyEndometriosisTeam Member

I had the Mirena for 6 months and had heavy periods and pain for the whole 6 months till I begged the doctor to remove it.
I also never had much facial hair but after the Mirena I developed visible facial fuzz.
I would not recommend Mirena to anybody.
Be that as it may, I reacted to most birth control methods badly with heavy bleeding.

posted November 29, 2023
A MyEndometriosisTeam Member

Oh my GOSH! You absolutely need excision with a vetted endometriosis EXCISION specialist. I don't know where you are.

I had one of the worst cases of STAGE IV DIE ever seen to the point it was almost inoperable. Had I not had surgery, I wouldn't be here today.

I promise your doctor hasn't a CLUE how to treat endo except with Mirena and other drugs.

posted November 24, 2023
A MyEndometriosisTeam Member

I have had a good experience with the mirena. I like you, tried so many types of birth control pills that I lost count and they all made me crazy and made my migraines worse. I was advised against the copper by more than on medical professional because that is known to cause more cramping.

I have no periods on the mirena and it doesn't make me crazy. The doctor told me it works be keeping the hormones local to the area it's inserted in, rather than passing through the blood steam like the rest. My neurologist told me that studies show it's not likely to cause migraines like the pill does. It's no fun to have put in, but it's worked so well for me, that I actually fear removing it.

Good luck.

posted November 22, 2023
A MyEndometriosisTeam Member

I had the Mirena for over a year at the age of 21. It stopped my periods and most cramps, but caused depression and hormonal acne. Got it removed earlier this year.

posted November 28, 2023 (edited)
A MyEndometriosisTeam Member

I'd inquire about referral to a GI specialist and ask that GYNE and GI collaborate on your case to find you a workable solution.

posted December 12, 2023

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