Same . Ihave endo in the colon

Thank you for your response! It really is a bit gut wrenching just thinking about not being able to have kids (even though I wasn’t crazy about wanting any in the first place). I was able to schedule a second opinion with a specialist at the local medical college and I’m very grateful that I have access to someone so close to me. I’m optimistic but also trying to not get my hopes up to high

It’s never crazy to get a second opinion. If you see another one of the same type of doctor I would guess the advice would be similar but if you see someone with a background in complementary and alternative medicine than they will definitely give you other options.
I also want kids someday and I dislike the idea of going on hormones that will suppress the cycle and symptoms but leave the problem for me to deal with later when I want to get pregnant. So, I’m refusing hormones and trying lots of alternative methods. Since my onset of more severe symptoms in December, I’ve noticed a lot of improvement especially in terms of digestion and feeling like I’m about to pass out. Still a long way to go.

Diagnosed 2015- stage IV-
Back in November 2024, my endometriosis specialist was hopeful about my left ovary and fallopian tube possibly not being compromised with much of the endometriosis that we tried to get pregnant on our own naturally. To do this, I had to stop taking norethindrone and remove the Mirena IUD to regulate my egg follicle production and AMH levels (which affect egg count). Up until this month (April), I had a full-on menstrual flow again, and estrogen levels exceeded what I do not miss. Luckily, I had a follow-up appointment with the endometriosis specialist. The timing was impeccable, as she was able to read with the transvaginal ultrasound that adenomyosis in my uterus had gotten so bad that a hysterectomy was the most logical option to alleviate my symptoms.
It is the most heart-wrenching emotional rollercoaster to know that you do not have your bloodline of children. Over time, I know I will probably eat my words and think, "Why did I do that?" I want to have less pain and debilitating and possibly worse things to come about my endo than what it already is infecting (lungs, more intestine, central nervous system/ brain), hoping to minimize as much as possible.
Sorry, rant done, but I can share similar scenarios and things that have crossed my mind, as well as paths that need to move forward for my health.
Hope this helps as a sounding board and perspective from a stranger.