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A MyEndometriosisTeam Member asked a question 💭
Pittsburgh, PA

So I had a laparoscopic surgery in March and I've had 3 or 4 periods since and nothing changed. I went to an endometriosis specialist and they ran tests and it turns out my periods are always going to be heavy, painful, full of clots, and uncomfortable forever for no reason at all. Also how will I ever know if its going back if my periods never change? Will I only know once its too late and it grows on other organs?

July 24, 2025
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A MyEndometriosisTeam Member

So I've always had only 1-2 periods a month before it all, but I've been on birth control so much im honestly unsure. How it goes for me is I start a pill keep taking it and after like 3 months it gives me a period and I keep taking it for months and if it still doesn't change and doesn't help so I either up the dose or switch to a new pill. I have to wear diapers on my period. Some of these symptoms I still have or only got after the surgery. But im on another pill which is supposed to be a period suppressor but I've already up the dose recently so i don't get periods as often as I should.

July 29, 2025
A MyEndometriosisTeam Member

I knew it was time for another surgery because your body gives you signs like more nausea, sharper stabbing, clots are larger, periods lasting months, vomiting, diarrhea, not being able to eat, stomach pain, sensitivity just touching your abdomen, headaches, and simply if I can't handle the pain any longer. Every body is different but after several years you just know something is off with your body a little more. Unfortunately, the periods will always be bad that's part of endometriosis. Are your menstrual cycles only once a month or are they all month right now?

July 29, 2025
A MyEndometriosisTeam Member

How did you know it was time for another surgery? Everytime I see other people's stories they say it was their period getting bad aging but mine is always bad. I am learning to advocate for myself because I've had almost every doctor I've seen dismiss me in some type of way or ignore my concerns. I've been through 5 different pills and an IUD. I've had combination pills, progesterone only, ect.

July 28, 2025
A MyEndometriosisTeam Member

I'm sorry to hear you are going thru this and young. I remember being your age and not even having an answer. Unfortunately, it will be like this. The doctors will prescribe hormones, progesterone, change in diet, etc... it's overwhelming for sure but I will tell you is to always advocate for yourself. If the doctor isn't fully listening to you then find another one. You have to find someone who will listen, care, and take measures to help ease your pain. I took Many years to find one who listens. I'm 34 now and I've had five surgeries so far. The doctor also doesn't want to give me a hysterectomy or remove my ovaries. We actually had this discussion today. I don't have babies either. Stay strong Hun and always speak up for your pain because only you live it. Lean on this community 🤗

July 28, 2025
A MyEndometriosisTeam Member

Thank you. It's hard everything is just piling up and because I'm young so they keep giving me different pills because nothing is helping my periods but even tho ik a hysterectomy can never fully treat endometriosis I would at least want to stop my periods.

July 28, 2025

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