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Finally had my first lap yesterday.I am left with more questions than answers. summery: scar tissue found on organs but not β€œclassic” endo

A MyEndometriosisTeam Member asked a question πŸ’­
Gold Beach, OR

πšƒπš‘πš˜πšœπšŽ 𝚘𝚏 𝚒𝚘𝚞 πš πš’πšπš‘ πšŠπšπš’πš™πš’πšŒπšŠπš•, πš˜πš› 𝙳𝙸𝙴 πšŽπš—πšπš˜, πš†πš‘πšŽπš— πšπš‘πšŽπš’ πš•πš˜πš˜πš”πšŽπš πš’πš— 𝚒𝚘𝚞, 𝚠𝚊𝚜 πš’πš˜πšžπš› πšŽπš—πšπš˜ πš‘πš’πšπšπšŽπš— πš‹πšŽπš‘πš’πš—πš πš›πšŠπš—πšπš˜πš– πš πš‘πš’πšπšŽ πšœπšŒπšŠπš› πšπš’πšœπšœπšžπšŽ πš˜πšŸπšŽπš› πš’πš˜πšžπš› πš˜πš›πšπšŠπš—πšœ? πš†πšŽπš›πšŽ 𝚒𝚘𝚞 πš πš˜πš›πš”πš’πš—πš πš πš’πšπš‘ 𝚊 πšœπš™πšŽπšŒπš’πšŠπš•πš’πšœπš πš πš‘πš˜ πš”πš—πšŽπš  πš‘πš˜πš  𝚝𝚘 πš’πšπšŽπš—πšπš’πšπš’ πšœπš’πšπš—πšœ 𝚘𝚏 πšŽπš—πšπš˜ πšπš‘πšŠπš πš πšŽπš›πšŽπš—πš πšπš‘πšŽ πšŒπš•πšŠπšœπšœπš’πšŒ πšπšŠπš›πš” πšœπš™πš˜πšπšœ?

I finally had my first laparoscopic procedure after a 15 year journey. While I’m relieved a cyst was removed, I woke up with more questions than answers. My surgeon was a general OBGYN who specializes in obstetrics. (Plus I don’t have private… read more

March 6
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Reactions
A MyEndometriosisTeam Member

Definitely go to a specialist. Endometriosis can look so different in everyone and the scarring is way different than just the β€œspots”. Praying you find relief!

March 24
A MyEndometriosisTeam Member

Your gut is 100% right because general surgeons miss "clear" or white endo lesions all the time! That "unexplained" scar tissue is a huge red flag that a real specialist would likely identify as atypical endo. Don't let a basic OBGYN gaslight you when your family history and symptoms are this loud! 🩺✨

March 6
MyEndometriosisTeam

For those with atypical or deep infiltrating endometriosis, was your endo hidden behind white scar tissue? Did you work with a specialist who could identify non-classic signs?

Your instinct about needing a specialist is spot-on. Endometriosis lesions vary significantly in appearanceβ€”they can be black, dark brown, red Show Full Answer

For those with atypical or deep infiltrating endometriosis, was your endo hidden behind white scar tissue? Did you work with a specialist who could identify non-classic signs?

Your instinct about needing a specialist is spot-on. Endometriosis lesions vary significantly in appearanceβ€”they can be black, dark brown, red, clear, or white. Many general OBGYNs are trained primarily to recognize the classic "dark spots," but atypical presentations are common and easily missed without specialized training.

The unexplained scar tissue (adhesions) your surgeon found on your appendix, bowels, and ovary is actually a significant finding. Adhesions are a hallmark of endometriosis, where tissue sticks organs together. Deep infiltrating endometriosis can penetrate deeply into tissues and may not always present as visible surface lesionsβ€”it can be hidden beneath scar tissue or appear as white, subtle changes.

Key points about atypical endo:
- Lesions aren't always dark; they can be white, clear, or red
- Deep infiltrating endometriosis may not show obvious surface lesions
- Adhesions and scar tissue themselves can indicate endo activity
- Specialists trained in recognizing all presentations are crucial for accurate diagnosis

Your symptomsβ€”severe pain, endo belly, bowel issues, painful intercourse, family historyβ€”strongly align with endometriosis. The biopsy results will be important, but even if they're inconclusive, your symptoms and the adhesions found are meaningful clinical evidence.

Seeking consultation with an endometriosis specialist who performs excision (not ablation) surgery is a wise next step. They're trained to identify and remove all forms of endo, including deep infiltrating disease that general OBGYNs often miss.

March 6

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