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A MyEndometriosisTeam Member asked a question πŸ’­

I got an IUD a couple months ago and it is helping my endo symptoms a good amount. The problem is it's also causing side effects the worst one being that I noticed previously it seems to make my POTS symptoms worse or trigger them completely. I was unofficially diagnosed with POTS but honestly since bringing my ferritin up and removing my previous IUD I really haven't had any symptoms other than occasional mild dizziness. Tonight was the worst POTS like episode I've had in at least 6 months to a… read more

October 15
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MyEndometriosisTeam

What a frustrating situation β€” finally finding something that helps your endo symptoms, only to feel like it's stirring up a whole other storm. That "trading one set of symptoms for another" feeling is something many people with endometriosis know all too well.

The mood changes and fatigue you're describing β€” including Show Full Answer

What a frustrating situation β€” finally finding something that helps your endo symptoms, only to feel like it's stirring up a whole other storm. That "trading one set of symptoms for another" feeling is something many people with endometriosis know all too well.

The mood changes and fatigue you're describing β€” including crying unexpectedly β€” are recognized side effects of hormonal IUDs. These are real and valid, not just "in your head." Other members of MyEndometriosisTeam have shared similar mixed experiences with IUDs. One member noted it helped their endo pain but came with side effects including "really terrible cramping and pain, acne, and weight gain." Another said their IUD helped significantly but acknowledged "we take the good with the bad."

The honest reality is that whether the benefits outweigh the side effects is deeply personal, and only you can weigh that. A few things worth considering as you navigate this:

- Track your episodes β€” note timing relative to your cycle, as symptoms can fluctuate hormonally
- Hydration and salt intake can help manage episodes in the meantime
- Mood symptoms that feel out of character are worth flagging urgently with your doctor, even if other issues feel harder to address
- Give it a little more time β€” some side effects do settle after the first few months, though that's not guaranteed

It may be worth pushing your gynecologist specifically on the mood changes, as those alone are a medically recognized reason to reconsider a hormonal treatment.

October 15

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