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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How do you cope with the not knowing what’s wrong part?

A MyEndometriosisTeam Member asked a question 💭

I’m currently experiencing severe pelvic pain starting 4–5 days before periods
Unbearable cramps on days 1–2.
Very heavy bleeding with clots.
Persistent left-sided pelvic pain, sometimes spreading across the abdomen.
Significant bloating and abdominal fullness.
Painful bowel movements around periods.
Deep pain during sex with certain positions.
Pelvic aching after sex.
Pain radiating into the left thigh.
Pain continuing between periods.
Bulky uterus, fibroid and ovarian cyst.

Every time I end up… read more

1 day ago
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MyEndometriosisTeam

First — what you're going through sounds absolutely exhausting, and the frustration of not having answers yet while living in that level of pain is completely valid. You are not imagining this, and you are not alone in this experience.

The symptoms you're describing — cyclical pelvic pain, painful bowel movements around Show Full Answer

First — what you're going through sounds absolutely exhausting, and the frustration of not having answers yet while living in that level of pain is completely valid. You are not imagining this, and you are not alone in this experience.

The symptoms you're describing — cyclical pelvic pain, painful bowel movements around periods, pain during sex, pain radiating into the thigh, and pain between periods — are all recognized patterns that gynecologists look for when investigating endometriosis. Keeping a detailed symptom diary like you're already doing is genuinely one of the most powerful things you can bring to your December appointment. While waiting, here are some ways others manage both the pain and the uncertainty:

- Heat therapy — heating pads or heat patches can help take the edge off pelvic pain
- NSAIDs like ibuprofen — taken regularly (not just when pain peaks) can help reduce inflammation-driven pain
- Tracking everything — pain levels, timing, triggers, bowel symptoms, bleeding — this builds a strong case for your gynaecologist
- Gentle movement or rest — listen to your body; some days rest is the only answer
- Finding community — connecting with others who truly understand can ease the emotional weight of the "not knowing" phase enormously One MyEndometriosisTeam member shared something that resonates here — even after trying countless treatments, they kept advocating for themselves. That persistence matters.

December feels far away right now, but going in armed with a detailed symptom log puts you in a much stronger position to push for answers. You deserve more than painkillers and "come back if it gets worse." 💛

1 day ago

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