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A MyEndometriosisTeam Member asked a question ๐Ÿ’ญ
Warminster, PA

I tend to just ball up when in intense pain, and I rarely cry actual tears of pain. I have Tramadol, and am afraid to be viewed as a drug seeker. At what point do you decide to go to ER?

January 16, 2016
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Answer Summary

Members shared raw experiences about the agonizing decision of when to seek ER care for endometriosis pain, with the overwhelming consensus... Read more

Members shared raw experiences about the agonizing decision of when to seek ER care for endometriosis pain, with the overwhelming consensus being that most avoid the ER entirely after being dismissed, misdiagnosed, or treated like drug seekers despite severe symptoms. Several members described coping strategies like heat packs, hot showers, frequent position changes, and taking pain medications at home, while others recounted traumatic ER visits where staff laughed at them, refused pain relief, or missed serious complications like bleeding or appendicitis. A recurring theme was the emotional exhaustion of being in constant pain with no real solutions, the fear of not being believed, and the need to advocate firmly for pain management that actually works, with one member finding relief through extended-release Tramadol and planning another laparoscopy to address worsening symptoms.

A MyEndometriosisTeam Member

I also no longer go to the ER. We seem to be treated like a joke by medical professionals. I once went after throwing up blood for three days and passing out and was told I was just dehydrated. I went back a couple days later because the vomiting and passing out continued, I had a doctor get two inches from my face and tell me I just needed to go home and "get some rest." I was in excruciating pain, was completely numb from the waist down, and everything outside of 6" in front of me was blurry and all they did was give me nausea medicine and a bag of fluids. I will be dead before I go back to the ER after that experience.

January 16, 2016
A MyEndometriosisTeam Member

I went after my first surgery when I was bleeding through two pads an hour. I was about a week post op then just stopped bleeding. I went to the Er they didn't even look at me down there other than to give me cathader then said I was dehydrated and refused to give me anything for the pain even tho I kept insisting I still had pills from surgery and I would just take those if that was the issue. It wasn't just the pain freaking me out it was all the blood and then the absence. They put me on a slow drip of saline meant to assist me in my dehydration. I haven't gone back for endo since. That was over 10 years ago.

January 16, 2016
A MyEndometriosisTeam Member

Yeah that's what has stopped me from going. What more could they do that I'm already doing. They can't stop the pain so to me it feels like a pointless visit.

I'm 6 months post op and my pain is already starting to come back so I'm thinking a specialist visit is due again ๐Ÿ˜”

Sending you healing vibes right back for some relief from the pain xxx

January 16, 2016
A MyEndometriosisTeam Member

I'm so sorry to hear of your experiences @A MyEndometriosisTeam Member. <3

January 23, 2016
A MyEndometriosisTeam Member

If your pain is not under control by the medications you have been prescribed Then it's a good time to go

January 20, 2016

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