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Does Anyone Have Endo Symtoms All Month?

Does Anyone Have Endo Symtoms All Month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in… read more

A MyEndometriosisTeam Member said:

I definitely have symptoms almost everyday. I have had 3 laparoscopys in 3 years because mine grows on my intestines, behind my uterus and on my ovaries and I have now been able to almost track when the growth worsens etc. Your doctor doesnt seem very sympathetic, but that is probably because they don't suffer from this themselves. I am a firm believer that you need a doctor that you can be open and honest with and someone that will genuinely be concerned. I find that excercise has helped me with my fatique, even when i am in a lot of pain I go because it also distracts me. I've completely cut down on dairy and red meat and gotten rid of all gluten in my diet as well as I've found that they exasperated my symptoms. Good luck, be positive and fight this head on :)

posted over 4 years ago
A MyEndometriosisTeam Member said:

I have pain everyday! I just had surgery December 2nd to remove as much of the tissue they can. It seems the surgery did not work so they put me on the Lupron shots to put me in what's called a menopause state. I myself am looking into how to cope with the pain and what works best for others so I can give it a try. Being 25 myself living with this is so unfair. I am with you girl.

edited, originally posted over 4 years ago
A MyEndometriosisTeam Member said:

I suffer every single day. I have a doctor that actually believes me about the pain. Somedays are worse then others, but lately it seems more bad then good. I just try to eat really good (when I am not nauseous) and a lot of water. I struggle too everyday to just get out of bed. Hope you find a doctor that will help you.

posted over 4 years ago
A MyEndometriosisTeam Member said:

I have Stage 4 Endometriosis, I remind myself daily that my situation could be so much worse but I deal with symptoms every single day of my life. Emotionally I have severe depression, I’m exhausted all the time, I have have about 20% of the bladder control I should have especially when I cycle, I’m on hormone therapy so I don’t get my period (which helps a huge amount for the pain I was having...every month, debilitating painful, migraines, in bed for 6 days, vomiting, diarrhea, unable to work, taking opiates just to survive). Because of the hormone therapy I’m on heavy antidepressants. I don’t feel myself at all. I miss myself everyday. But exercise helps, I eat very few foods that are inflammation causing (no dairy, alcohol, wheat or products that contain gluten, only natural unprocessed sugar, limited red meat). I use CBD and THC daily. All of this helps. And sleep. Do what you can and forget the rest. You have to accept it. Find stress reliving activities. Activities that bring you joy.

posted 12 months ago
A MyEndometriosisTeam Member said:

I am in pain daily some days are better than others. I know how you feel.

posted about 1 year ago
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