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A MyEndometriosisTeam Member asked a question 💭
Belle Fourche, SD

What is everyone's opinions and experiences on the Lupron shot?

April 30, 2016
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Answer Summary

Members shared deeply mixed experiences with Lupron for endometriosis, with some finding significant pain relief while others described severe... Read more

Members shared deeply mixed experiences with Lupron for endometriosis, with some finding significant pain relief while others described severe side effects like migraines, intense menopausal symptoms, vaginal dryness, and relationship strain that made them vow never to use it again. Several members described the agonizing decision-making process, weighing the risk of permanent infertility and worsening symptoms against the unknown and often frightening side effects, with many feeling caught between impossible choices. A recurring theme was the lack of clear guidance from doctors, the fear of long-term consequences like bone density loss and cognitive changes, and the desperate search for any treatment that might offer relief when birth control and other options have failed.

A MyEndometriosisTeam Member

I did. I wouldn't do it again. My cyst has grown.. Pain is just as severe and then you have the awful side effects.

August 24, 2016
A MyEndometriosisTeam Member

It's a vicious cycle. You really have to weigh out the pros and cons. I only have a couple months left on the injection (you can only take Lupron short term) and then I have no idea what I'm going to do :( Birth control is not my friend, never has been! I've had such fantastic pain relief with Lupron, I'm scared of what will happen when I discontinue.

Anywho, I'm glad I was able to help! It's definitely something you and your husband should discuss together! It's put a bit of a damper on my relationship due to the severe vaginal dryness and lack of intimate desire. My bf and I hardly ever have sex because the idea no longer appeals to me. It's added tension to our relationship but thankfully he's understanding! Communication is key! Good luck with your decision!!

May 3, 2016
A MyEndometriosisTeam Member

Ugh, you poor thing! It's hard when you don't have a lot of other options. My gyno had me trial Lupron for 4 months and told me if the side effects were too unbearable or I didn't have relief, we could check into other options. I felt like it was worth a shot! It's definitely better than constant pain! Since I'm getting so much relief from it, we are doing it for a solid year!

May 3, 2016
A MyEndometriosisTeam Member

I've been on Lupton for just shy of 9 months now. Birth control was not helpful at all! I was really on the fence about it at first too. After trying 5 different birth control pills over a year span, then having increasing pain, I decided to try it! My endo pain is now nonexistent, but the side effects aren't fun. I'm 24 with no children, basically going through medical menopause. I hate it. But you have to decide which is the lesser of the two evils. Endometriosis runs in my family, and my mother had a full hysterectomy at 32 years old. THAT terrifies me! I'll deal with the shitty side effects...

May 3, 2016
A MyEndometriosisTeam Member

I'm going to talk to my doctor more about it tomorrow. After hearing all the bad things, my husband doesn't want me to do it. I'm on the fence. I feel like if I don't do it, I'll never have kids and I just don't know if I'm ready to accept that. Most days, I feel like I have a death sentence and I'm a ticking time bomb. I just don't know what to do.

May 2, 2016

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