They probably feel awkward about it being an intimate area to talk about and they likely do not understand what it is. When I explained it my friends and family often dismissed it as painful periods until I started having surgery and they realised there was more to it. I have found that I have become very resilient and emotionally self sufficient because I have had to cope mostly alone. I think the problem is that when someone has pain most days and a condition that affects their whole life, people sort of forget that it isn't normal and start these this version of you as the usual you. They filter out your obvious distress and stop seeing it so they seem to lose interest. Even my husband does this, it's not that they don't care, i think it's just how people are. Online groups can help of course, but personally I found I now prefer my own company when it's bad.