This happened to me. After being diagnosed with endo after my first laparoscopy, my gyn was very vague with what she found. She said it was all over my abdomen and I had some adhesions and that she got out all that she could, but she didn't have any pictures to explain and her only option for me was to put me on lupron. Being an 18 year old, and hearing the horror stories about lupron my mom decided to take me for a second opinion. Honestly getting a second opinion was the best thing I could've ever done. My new doctor really took her time with me and came up with a much better plan of treatment for me. She put me on a combo of Letrozole and Norethindrone, which still had some not so fun side effects but was much gentler on my body. She also expressed her concern about my fertility and referred me to a fertility specialist to have my eggs harvested and frozen. If I would not have sought a second opinion there's no telling how my health would be right now. Looking back I feel that my original GYN was just going through "routine" with me, whereas the specialist I sought a second opinion from really took time and cared for me.

a second opinion is always a good idea. It sounds severe and all the information you can get is good. As we process we have more questions too. You need someone to take the time with you.

100% get a second opinion! Have you had a laparoscopy? If not then please say you need to have one asap as they'll remove what they can there and then! I had one done after being pushed around from pillar to post and I finally just said "I'M NOT LEAVING WITHOUT A REFERRAL FOR A LAPAROSCOPY!!!" Nobody really knew what was wrong with me until I had my op and got diagnosed with endo and then had most of it removed. Best thing I ever did! However I had stage 1 endo, but with maximum pain...

I would still seek a second opinion though. You can even go back to her and say that's what you want and she'll refer you on to someone else, because you are completely within your rights to ask for one!

I haven't heard of Lupron, but I do know that just ibuprofen and paracetamol did absolutely nothing for me! I was eventually put on mefenamic acid, buscopan and codeine, which really helped (although not enough at bad times where I needed an ambulance and morphine!!!) But that was in my later stages before proper diagnosis. Please seek more help and explain about pain medication and relief as any good GPS should be able to tell you a whole variety of routes to take. I changed the pill after my laparoscopy, after trying 4 different types that never properly helped, so am now on the POP 'Progesterone Only Pill' and it's helped so much! I'm hardly ever in pain now and also don't get periods! What a blessing!

Good luck :)

Thanks everyone! I'm going to try and get more answers from my doctor while simultaneously looking for another GYN that will take Medicaid (mediCal here). Hopefully I can get a few more answers to settle my mind and pass on to a new doctor. If you live in the bay area and know of good docs for this, please give me a shout! Again, thanks for the answers and support.

That's how I was diagnosed. She performed a laparoscopy, found the endo, and then met with me. Apparently she couldn't remove anything without damaging organs or she would have during the diagnostic laparoscopy. Didn't say what stage, just that we needed to stop the growth and that lupron would do that for the 6 months I could take it. It's a chemo drug and damages your bones so you can't take it longer than that. I'm grateful she listened after 13 years of fighting. But I'm disappointed with the post op as she rushed through it, didn't explain much, and left me with more questions than answers.

From the bit of description I got I'm estimating stage 2 but I'm not a doctor so it's probably wrong. She's given me Tylenol with codeine. Which at least keeps from crying and screaming. It just takes the edge off but any less pain is great in my opinion. I was referred to her when I bluntly informed my last GYN that I had two kidney stones at the same time without treatment for two days cause I thought it was period cramps. There was no more arguing. Lol.

But that's part of why I'm considering a second opinion. She did the lap but it was all over so she couldn't remove it without harming me and she said the growth needed to be stopped. With as little info as she gave me, that scares me just a bit. Thing is, I don't know where else will take state insurance. I'm also always afraid of making ppl angry cause I'm paranoid. But I also don't think it's okay for me to be left this adrift. :/