Answer Summary

Members shared their experiences with persistent endometriosis pain after hysterectomy, with many reporting that removing female organs did... Read more

Members shared their experiences with persistent endometriosis pain after hysterectomy, with many reporting that removing female organs did not eliminate their symptoms and some developing new conditions like interstitial cystitis, IBS, possible Crohn's disease, GERD, and gastritis. Several members offered practical coping strategies including pelvic floor injections, hormone therapy, pelvic elevation during flares, and working closely with both gynecologists and gastroenterologists to manage overlapping symptoms. A recurring theme was the frustration of being told by doctors that endometriosis cannot exist without female organs, countered by community knowledge that endo can spread to intestines, bowels, lungs, and even the brain since it feeds on soft tissue.