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A MyEndometriosisTeam Member asked a question 💭
Nottingham, UK

Hi all,

I posted earlier this week about my symptoms so far, but I wanted to ask about bowel movements. I need to be pretty explicit, so apologies in advance.

I have my lap next month for diagnosis, but there's something really bothering me about my digestion right now. Does any of this seem familiar?

- the usual diarrhea/constipation cycles - sometimes up to 20 times a day or only 3 times a week
- Constant discomfort and feeling like I need to poo/like my poo isn't getting through properly… read more

July 26, 2018
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Answer Summary

Members with endometriosis strongly related to the original poster's digestive struggles, with many sharing that their own IBS diagnoses... Read more

Members with endometriosis strongly related to the original poster's digestive struggles, with many sharing that their own IBS diagnoses turned out to be endometriosis-related adhesions on the colon or digestive organs that were only discovered and improved after laparoscopic surgery. Several members offered practical coping strategies for constipation and bloating, including fiber supplements, Senokot tablets for occasional relief, fresh prunes, peeled potatoes for gentler digestion, and probiotics like Florajen 3. A recurring theme was the frustration of having serious digestive symptoms dismissed as IBS when endometriosis was the true culprit, with members urging the poster to seek an excision specialist and stay hopeful that surgery may bring significant digestive relief.

A MyEndometriosisTeam Member

I forgot to specifically state, my laparoscopy did reveal endometriosis and a lot of adhesions

July 27, 2018
A MyEndometriosisTeam Member

Hello,

I am sorry you are going through this. I 'll share a bit of what happened to me because some of the symptoms you listed sound so familiar.
I had a very good stomach all my life no problems. Past 6 months I ve experineced horrible changes in digestion, yellow stool constantly for 4 months, periods of diarrhea aftered with constipation, blood in my stool, strong stomach pain (right below the stern behind the ribs) and strong lower abdomen pain (ovaries,tubes lower intestine sometimes it all felt like burning inside of me and horribly painful). I was told I have gastritis and went through anti acids and gastro coloscopy and surprise surprise didn t help and nothing was found. It was not until my gynecologist suggested it could be endometriosis.
Long story short. Had recently a laparoscopy and I got my digestion back! No more stomach pain from things that normally caused me pain(sugar, fat), stool quite close to brown and regular. I basically got my digestion back. All the digestive symptoms are often discarded or mislabeled as ibs or gastritis.

I really hope this will be the case for you too! Best of luck with the surgery and if you feel like it, please do post your experience. If your digestion does not improve a gastro-endoscopy would be really good (check both your stomach and your colon) gpr your peace of mind.

All the best!!

July 27, 2018
A MyEndometriosisTeam Member

I have most of the same symptoms but in 1984 I was diagnosed with endo behind the bowel & bladder. They were afraid to remove it. Now I think it is giving me gastric obstruction bc that is what the ct shows. I have to have endoscopy & upper GI w/ small bowel follow through. I also am loaded with adhesions.

July 27, 2018
A MyEndometriosisTeam Member

Hi bex,

Yes I have all these symptom, I actually goggled 'white poo' before my diagnosis. It's to do with the amount of bile produced in the small intestine. The slim shape I suspect is down to swelling in the digestive system making it hard to get through. On the days I've struggled - like if you get to day 3 and no success I've been using senokot tablets. One in the evening and I'm good by the morning. If you use it don't make it a habit it's just for when your desperate. Otherwise you can try fresh prunes which also work for me quite quickly. :) I also get pain when eating, and no matter what my stomachs swell like a balloon. I tried doing a food diary, the outcome really was that nothing specific affects it. What I would say is I found potato without the skins easier on the stomach. So if you're struggling that's something to try. I'm a nutritional therapist so have some idea about things but it still baffles me how much my digestive system is affected. I'm currently under a gastric consultant who is helping so I'll let you know if that leads to anything. X

July 26, 2018 (edited)
A MyEndometriosisTeam Member

All of your symptoms were very similar to mine, I too diagnosed with IBS- but turns out there was an adhesion to my colon- whch they fixed.
eat or supplement with lots of fiber- it seemed to help with the symptoms.

July 26, 2018

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A MyEndometriosisTeam Member asked a question 💭
London, UK

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