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A MyEndometriosisTeam Member asked a question 💭
Doniphan, MO

I started Lupron the beginning of this month and so far it had been mental and physical hell. Has this been the same for others? And what was the success rate with you?

September 9, 2018
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A MyEndometriosisTeam Member

When you get a chance, I would recommend going back to see your provider to see if they can add another hormone to offset what your going through. IDK if it was the combination of the 2 drugs or just the added one that caused my weight gain, but I was able to come back down once I was off both. I didn't gain any during the first but I do remember my libido crashed and I was moody without reason. For reference, my gyn put me on Norethindrone this last time. It's basically a birth control pill.

September 11, 2018
A MyEndometriosisTeam Member

The first time I had lupron it sucked for 6 months. The hot flashes were the worst part for me. The second time I got the injection, my gym prescribed me another hormone to take to avoid all the side effects of the injection. Unfortunately it caused a lot of weight gain. Needless to say, I was glad when both were completed. My first run was immediately following the surgery, the second was an attempt to avoid surgery. I went 10 years between the two and finished the second a few months ago.

September 9, 2018
A MyEndometriosisTeam Member

Yes...most people have side effects on Lupron, I did. Worst for me was the hot flashes, I also had my hair turn from curly to straight (it is back normal now) but it did help my pain at the time. I suggest giving yourself the shots (if you are ok with doing int) you can control the amount better that way and not need to do a large dose once a month, I did mine daily. Have you heard of Letrozole/Femara? You can try that along with birth control treatment together. I hope that can give you some idea.

September 17, 2018
A MyEndometriosisTeam Member

I am also on norethindrone as an addback but it doesn't seem to be helping.

September 11, 2018
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member My pelvic and abdominal cramps have been absolutely horrible. My mood swings have been trough the roof, I keep going off on my boyfriend and the next minute I'll he crying over it.. I have hot flashes all day long. My hip/back and leg pain has doubled and I've noticed that I just really don't want to even be touched...This medication has taken quite a toll on me.

September 10, 2018

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