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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Burning pee

A MyEndometriosisTeam Member asked a question 💭
Centurion, ZA

I want to know if anyone else goes through the samething, i need to drink at least 1l of water a day if i dont my pee burns my vagina and it really hurts for a while. When i ask my gynecologist he has no answers for me.

January 23, 2020
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Answer Summary

Members connected over the painful and frustrating experience of burning urination, with many sharing that they initially suspected UTIs but... Read more

Members connected over the painful and frustrating experience of burning urination, with many sharing that they initially suspected UTIs but consistently tested negative, only to later discover bladder endometriosis or endo on the ureters during surgery. Several members emphasized that drinking at least two liters of water daily significantly reduced burning and improved overall health, though some noted lingering symptoms like unusual odor or sharp pains that persisted despite hydration. A recurring theme was the emotional exhaustion of navigating unexplained symptoms and feeling unheard by doctors, met with deep solidarity and offers of support from the community, with members encouraging each other to keep fighting, seek specialists, and lean on one another through the isolation and weariness that endo brings.

A MyEndometriosisTeam Member

Yes i had the same problem and it turns out i had endo on my bladder and both my ureters. You should definitely see a specialist to rule anything out. Also i would always go to the doctor for uti and my tests would always come back normal.

January 23, 2020
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member i do too when i drink water it flows right put of me. Do you think we can connect outside this platform?

January 23, 2020
A MyEndometriosisTeam Member

I also use the restroom very frequently. Typically every 30 mins-1 hour.

January 23, 2020
A MyEndometriosisTeam Member

It sometimes burns to pee but I also get sharp pains when doing so a lot of the time. When I originally brought this up with my OBGYN, he also found bladder endo in my laparoscopy following that visit. I know it's tough to keep fighting, but one day there will be a cure! There's gotta be! We're all here for you and I will also be more than happy to be talked/vented to as well^^

January 23, 2020
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member i totally understand and its really disheartening to hear that youre feeling so down. But just know youre not alone, keep fighting because you’re warrior strong not endo strong 💕🥰please let me know if you ever want to talk or vent i am more than happy to!

January 23, 2020

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