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A MyEndometriosisTeam Member asked a question 💭
Malvern, UK

Hi all, I haven’t been on in a while- early last month I was put on the combined pill (I’m already on the Jaydess coil too with this and that’s due to come out in November) to control the periods and stop them completely. This worked, my doctor said it should minimise the pain due to no bleeding. I’ve taken all tablets regularly & haven’t missed any, yet I’m in agony worse than before. I’ve been bad before many times to the point of not being able to move, but this time I can’t stop shaking with… read more

April 22, 2020
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Answer Summary

Members connected over the distressing experience of severe endometriosis pain causing uncontrollable shaking, with several sharing that this... Read more

Members connected over the distressing experience of severe endometriosis pain causing uncontrollable shaking, with several sharing that this can happen when still ovulating despite being on medication or when treatments aren't fully controlling symptoms. Many members offered comfort strategies that have helped them through particularly bad episodes, including hot showers, heating pads, herbal teas, allowing yourself to cry to release tension, and trying cold compresses when heat makes things worse. A recurring theme was the exhausting trial-and-error process of finding effective treatments and the importance of continuing to advocate for yourself with doctors, even when multiple medications fail to provide relief.

A MyEndometriosisTeam Member

I hope you are feeling better today!!

Maybe my video will make you giggle a Bit

https://youtu.be/oG_KenWdtlI

May 1, 2020
A MyEndometriosisTeam Member

There’s good days and then there’s bad days

April 26, 2020
A MyEndometriosisTeam Member

My doctor tried to switch my medication but it only made things worse for me. When I switched to a birth control pill every month I was in the the hospital with very low blood pressure and couldn’t keep even water in my system. I switched back after 6 months and haven’t had that since. It’s trial and error really when it comes to the medication

April 24, 2020
A MyEndometriosisTeam Member

I get this as well with the medication I’m on. My doctor told me it’s because I am still ovulating. He prescribed me naproxen but in a higher dose as no other remedies were helping

April 23, 2020
A MyEndometriosisTeam Member

Hey honey!!! Your symptoms sound so familiar to me!
It will get better! Keep advocating for yourself!!
Follow me on my YouTube Journey!!

https://youtu.be/0Rik_YJJEtg

April 22, 2020

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