I completely and totally feel for you. I have been in constant pain for 2 weeks it seems like. I cannot talk. Moving my diaphragm, stomach up an down. Point an the dogs an no talkie talkie, they know what they have to do. Lol I say nothing. 😭😭😭

@ChayaMiriamWeisman- You have made me feel so much better and that it is not “all in my head” my regular gyn is like you have been in pain for so long, the brain is experiencing phantom pain. I get it and I have known her for almost 30 years, but I know when my body feels like an explosive painful hot mess. It feels like leftover endo to me, I am cramping too I shouldn’t be I have nothing left. Ugh.
I received my first order of the v valium, I will let you know how it goes. 🙏

You're so welcome! I've tons more to add given what your doctor told you. I am infuriated! You doctor performed ablation, and endo does NOT naturally die off. It must be excised.

I know of Karli Goldstein. My friend had surgery with her in January, 2020. She's excellent. She works with Tamer Seckin currently. She's excellent. You just reminded me I need to call their office to make an offer they may not be able to refuse.

I just got home from my GYN who also performs excision and takes insurance. She learned with Dr. Seckin as well. My friend is having surgery November 12rh.

I'm falling on my face. I will tell you more tomorrow and give the names of more excision specialists.

Hang in there!

@ChayaMiriamWeisman- Thank you so much for all of the info this is helpful thank you!! I am going to try the valuim first then PT probably after that. I am not certain if my surgeon excised or did ablation with my past surgeries. He also told me that when my ovaries come out which was this past October any leftover endo should die off. Well I am feeling this intense knock your socks off pain again, so either endo is leftover, scar tissue has re-grown who knows. My estrogen level was just tested and was negative which my GYN told me is a good thing.

I remember you telling me a while back about Dr. Vidali in the city. I have been wanting to reach out to him maybe I should, but I do not think he takes insurance?

The pharmacy that is fulfilling the order said there is another Endo specialist in NYC, Dr. Karli Goldstein. I’ll have to look into her as well.

I just wish there was a way I could apply for permanent disability ugh.

Did you have excision by a vetted endo excision specialist? That is also crucial!!