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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭

I just got a second opinion after diagnostic surgery in January 2025. I had pictures taken during the surgery as I had suspected endo in my thoracic region. The doctor confirmed it is likely endo up near my left rib. I do experience a lot of pain. The doctor was nice but pushy about me taking Myfembree, almost implying I’d be irresponsible not to try it because lesions are just going to keep growing out of control and it’s especially concerning because they appear to already be up in my thoracic… read more

July 6, 2025
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A MyEndometriosisTeam Member

I took myfembree for a year after my second endo removal surgery. It made my life much better. Took away the pain for 6 months. Then had to add another medication on top of it to help suppress another hormone that my doc said could be causing the endo to grow. I got off of it about a year later to try and have a kid. When after trying for 2 years my doc said I needed to go back on birth control because of the endo and PCOS and I could get cancer if I dont manage it. But while I was on myfebree it did help me. However, it is a short term solution. I have been told you should not take it more than 5 years. After my latest endo removal surgery, last month, the pain has come back and my doc wants to put me on depo lupron.

July 28, 2025
A MyEndometriosisTeam Member

Perfect time for a second opinion with gyno Endo surgeon.

July 27, 2025
A MyEndometriosisTeam Member

Reminder that Myfembree is used for chemotherapy treatment, and I'm only saying this because I was on it for months until my surgeon questioned it and took me off of it. IF the goal is to stop or kill the bad cells then fine, but just read about it to make sure it is the right medication for you!

July 27, 2025
A MyEndometriosisTeam Member

I’m in the same boat I have stage 4 endo and endo in my intestines multiple surgeries .. my surgeon wanted me to take myfembree as well but I also did not want all the horrible side effects it’s like we already suffer enough from the endo pain why add in more and even have menopause symptoms.. i don’t want to take any of those either and my surgeon now tells me just have to wait for another clean up surgery,,

July 8, 2025
A MyEndometriosisTeam Member

How did they know its in the thoracic region? My daughter has severe upper body around her ribs and chest pain. Have you tried another Dr?

July 7, 2025

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