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A MyEndometriosisTeam Member asked a question 💭
Kolkata
May 10
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A MyEndometriosisTeam Member

I also have DIE and experience breast pain. I had a lumpectomy in 2018 that ended up being a fibroid. I've developed another large lump and went to the doctor again to make sure it wasn't something concerning. He said that the high level of estrogen was likely causing these fibroids to continue to develop. I am just now 6-weeks post-op from having my ovaries removed...the lump is still there but I have not had as much breast pain. I know ovary removal isn't an option for everyone, but I do believe that there is a connection between endo and breast pain...most likely hormone related. I hope you find relief from your pain soon.

May 10
A MyEndometriosisTeam Member

I don't have DIE, but I get breast pain

May 18
MyEndometriosisTeam

Is breast pain normal with deep infiltrating endometriosis (DIE)? The short answer is: yes, it can be.

Breast pain is actually a fairly common complaint among people with endometriosis in general. With DIE specifically, the connection often comes down to hormones. When endometriosis affects the ovaries, it can form Show Full Answer

Is breast pain normal with deep infiltrating endometriosis (DIE)? The short answer is: yes, it can be.

Breast pain is actually a fairly common complaint among people with endometriosis in general. With DIE specifically, the connection often comes down to hormones. When endometriosis affects the ovaries, it can form fluid-filled cysts called endometriomas. These cysts can disrupt how the ovaries produce hormones like estrogen and progesterone, and that hormonal imbalance can lead to breast tenderness and pain.

Breast pain related to endometriosis generally falls into three main categories:

- Hormonal changes – Disrupted estrogen and progesterone levels can trigger breast discomfort
- Menstrual cycle – Pain that shows up before or during your period (called cyclical breast pain) is very common, with breasts feeling heavy, achy, or swollen
- Medications – Treatments like progesterone, oral contraceptives, or ovulation-suppressing drugs can list breast pain as a side effect

As one MyEndometriosisTeam member shared, breast pain was even interfering with their sleep: *"My breasts hurt often during ovulation and my period. I can't even sleep properly sometimes."*

It's always worth mentioning new or worsening breast pain to your doctor, just to make sure it's being properly managed alongside your other symptoms.

May 10

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