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"Hormone-free, severe bladder symptoms

A MyEndometriosisTeam Member asked a question 💭
Netherlands

I stop taking hormones last year and in March during Endometriosis Awareness Month, I got my period again for the first time in a long while." After two menstrual periods I started getting severe bladder symptoms. On my worst days I experience every 3 to five minutes. That was really exhausting. My thirds period broke through the medication in May. Does anyone else have experience with this? I have started the medication Provera again.

June 3
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A MyEndometriosisTeam Member

Eu mesmo tomando a deprovera continuei menstruando e dores fortes
E sem tenho hemorragias tenho que tomar vitamina intravenosa e bolsa de sangue
Tenho desmaios repentino
É horrível

June 10
MyEndometriosisTeam

What a tough few months — going hormone-free, getting your period back, and then dealing with severe bladder symptoms on top of everything else is genuinely exhausting. You're not alone in this experience.

Bladder symptoms are actually a well-known complication of endometriosis. When periods return after a hormone-free Show Full Answer

What a tough few months — going hormone-free, getting your period back, and then dealing with severe bladder symptoms on top of everything else is genuinely exhausting. You're not alone in this experience.

Bladder symptoms are actually a well-known complication of endometriosis. When periods return after a hormone-free period, endometrial-like tissue can become active again, potentially affecting the bladder and causing symptoms like urgent, frequent urination — sometimes every few minutes on bad days, exactly as you've described. A MyEndometriosisTeam member shared a similar experience, describing symptoms that started as painful, burning urination before eventually receiving a bladder-related diagnosis alongside their endometriosis.

Restarting Provera (medroxyprogesterone) to suppress your cycle again makes sense as a step toward managing these symptoms. It's worth having an open conversation with your gynecologist about:

- Whether your bladder symptoms need further investigation
- Whether a referral to a urologist or pelvic specialist would help
- Lifestyle adjustments like avoiding bladder irritants (caffeine, citrus, carbonated drinks)
- Pelvic floor exercises to help strengthen the area If symptoms don't improve once your cycle is suppressed again, it's really important to flag that with your doctor promptly. Bladder symptoms in endometriosis can sometimes indicate deeper involvement that may need further treatment.

Hang in there — getting your hormones regulated again should hopefully bring some relief soon. 💙

June 3

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