MyEndometriosisTeam

What a journey — 44 specimens removed and still fighting. That takes serious strength, and it makes complete sense to explore every option available, including disability benefits.

While specific attorney recommendations aren't something that can be provided here, a MyEndometriosisTeam member shared this helpful advice Show Full Answer

What a journey — 44 specimens removed and still fighting. That takes serious strength, and it makes complete sense to explore every option available, including disability benefits.

While specific attorney recommendations aren't something that can be provided here, a MyEndometriosisTeam member shared this helpful advice: hiring a representative is worth it, even with a fee, because it can move the process along faster. Another member noted that denials are very common at first, so don't get discouraged if that happens. To vet attorneys and avoid predatory practices, consider these steps:

- Check reviews on Google, Avvo, or Martindale-Hubbell
- Look for Social Security disability specialists, not general practice attorneys
- Reputable disability attorneys typically only charge a fee if you win (capped by law at 25% or $7,200, whichever is less)
- Contact the New York City Bar Association's Lawyer Referral Service for vetted options
- Ask your gynecologist or specialist for referrals Regarding your concern about "looking okay on paper" — this is really important to address. The SSA evaluates how endometriosis affects your daily life, not just your diagnosis. A few key tips:

- Document everything: pain levels, how long you can stand, missed work, fatigue
- Be completely honest about your worst days, not your best
- One MyEndometriosisTeam member emphasized that how the illness affects everyday life matters more than the diagnosis itself
- Your surgical history, MRI results showing worsening DIE, and part-time work status are all meaningful evidence Also worth knowing — since you're currently earning part-time income, make sure it stays below the SSA's threshold (currently around $1,470/month for 2024) to remain potentially eligible. Your doctor's documentation verifying how your condition limits you will be crucial to your case.

You deserve support — don't give up if the first answer is no. Appeals are very common and often successful.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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