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A MyEndometriosisTeam Member asked a question 💭
Baton Rouge, LA

I am starting to look into the success others have had with going gluten free. If you have done this for endo, how did you start? Do you have absolutely NO gluten/wheat or do you have a little bit here and there? What are some tips for making the transition?

May 19, 2015
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A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member not sure, so far there's no huge difference other than when I eat gluten I have some digestive pain. I expect lots of endo pain in the next few weeks so I will definitely report back on how my experiment is going!

June 9, 2015
A MyEndometriosisTeam Member

Gluten is really hard on me. The more I eat the more pain and swelling I have. I would recommend that you just try limiting it at first to see if your pain lessens or go one day without anything gluten and see if that helps too. But if you decide gluten-free is best for you, then ease yourself into it no matter how tempted you are to cut it out quickly because of the pain. A LOT of foods have gluten so do plenty of research.

June 7, 2015
A MyEndometriosisTeam Member

Xtine, only you and your body can tell you how much if any gluten you can/cannot have. As someone who is sensitive, I notice each time it's typically a little worse and it comes on faster. I've learned what foods I can cheat with and what to avoid. I can NOT even be in the kitchen/near the kitchen if someone is working with loose wheat flour to make bread/cookies. I start sneezing and can't stop for such a long time, plus get horrible headaches. It's strange because I can use products-lotions, makeup that have gluten without a problem. But I've noticed if I eat it, I get a bit of a rash...in the same spot each time.

May 21, 2015
A MyEndometriosisTeam Member

Just over a year ago I went gluten, dairy, soy free and I can definitely tell a difference with my fatigue levels! As far as pain goes, I can tell if i've eaten something I shouldn't have because I'll get bloated, increased pain and have irritable bowel symptoms, but my pain hasn't changed much so maybe I could contribute lower pain levels than they would've developed into. I used to have migraines and much worse fatigue, and gluten has helped with that-- it was hard at first, but I've turned a lot of people onto going GF and hearing great results from them! I hope it goes well for you :)

May 21, 2015
A MyEndometriosisTeam Member

My doctors think it's bull shit. My acupuncturist was the one who explained the connection to me. Gluten and Endo bond to each other. The GI issues were so bad I swore I had food poisoning until I kept a food diary and realized yea it was gluten. Even then I had a blood test for Celiac. Before you go GF, be tested for Celiac..have a biopsy, so don't go off gluten first. I allow myself cheat times once a month. Warning: brace yourself. It's like an alcoholic going through withdrawal for myself and for many. Not just the I want's, but otherwise. Don't think of it as a diet. Think of it as a lifestyle change. The more you can eat foods that are naturally gf, the better. It's a learning curve to what brands are best, what to make yourself. What's just not worth it.

May 21, 2015

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