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A MyEndometriosisTeam Member asked a question 💭
Santa Cruz, CA

Hi everyone
My name is Rita and I'm new here. First and foremost I want to thank you all for creating and being a part of this community. Having endometriosis can be a very lonely condition. Quick background on my story: I am 27 y.o. and at 21 I have 2 catamenial pneumothoraxes (my lungs collapsed) because of endometriosis growing in them. I have had 2 surgeries (vaginally), one in 2012 and the last 2016 to remove what they could in my uterus. I have been diagnosed with stage II. Recently, I… read more

September 6, 2018
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Answer Summary

Members overwhelmingly cautioned against using Lupron for endometriosis treatment, with several sharing personal experiences of severe side... Read more

Members overwhelmingly cautioned against using Lupron for endometriosis treatment, with several sharing personal experiences of severe side effects like hot flashes, night sweats, body aches, and permanent bone density loss of 3% or more, often with little to no pain relief. Many community members described Lupron as offering no better results than continuous birth control but with far worse consequences, urging the original poster to seek second opinions from vetted endometriosis specialists rather than rushing into treatment. A recurring theme was the importance of finding surgeons who prioritize excision surgery over medication, with members sharing resources like Nancy's Nook and specific doctor recommendations, while emphasizing that many physicians prescribe Lupron too quickly without fully informing patients of its long-term risks.

A MyEndometriosisTeam Member

Don't do it! Lupron Depot is BAD stuff. I was on it for 6 months. For me, it didn't work any better than being on continuous cycle birth control, plus it breaks down your bone density by 3%+ for life. It has many other side effects. I wish I had known more before I tried this. I hope you find the help you need.

I am seeing Dr. Cindy Mosbrucker in Gig Harbor, WA. Women come to see her from across the nation. I recommend getting in touch with her office and seeing if there is someone in your area who shares her philosophy/belief that this can be cured with surgery. Best of luck.

September 7, 2018
A MyEndometriosisTeam Member

I had "2 regular gynecologist" Both did fanstastic job.Last one released my colon that was not in proper place because of adhesions.She also did excision.I had several years between both surgeries.If you cannot get a "Specialist".Look for one that takes the time to listen and care.

September 6, 2018 (edited)
A MyEndometriosisTeam Member

Thank you for sharing. I am so happy that I have helped you even if in some small way. I have had 2 surgeries and they have helped me tremendously. The downfall is that after a few years the pain seems to creep right back. Endometriosis is a tricky disease that is hard to deal with. I hope you find the answers you need <3

September 10, 2018
A MyEndometriosisTeam Member

Thank you for sharing your experience and I hope you find answers on your journey. I just wanted to post because my surgeon does not want to do a laparascopy to even diagnose me for endo and wants to just put me on Lupron. From what my friends have said and what research I have done, it does not sound like it is worth the risk. But I wanted to thank you for sharing and wanted to let you know that you posting this question has helped me too as I have been trying to find out more about Lupron for myself. Best of luck and healing!

September 9, 2018
A MyEndometriosisTeam Member

Wow, I can hear your struggle. I’m sorry you haven’t found a solution and that this option failed you. Thank you for sharing and the more I hear the more I’m thinking it’s not the best option.

Best of luck to you and your journey <3

September 8, 2018

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