Top 10 search results for "what is it like to live with endometriosis" in Q&A. To see all results and access other features, sign up for free.

I had my second laparoscopy on Feb 2nd. Ever since I have constant boughts of nausea. It almost seems like everything I eat and drink makes me extremely sick. I've had a couple nights of violent vomiting but other than that it's typically nausea and pain with pressure on my stomach. Anyone experience something similar? I do have a gluten sensitivity but I have not had any issues around that. I've been seriously considering a mostly vegetarian diet due to this...

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been stabbed so, I do not… read more

I recently went to the doctor this past month (Oct) and told told them of mu extreme nausea and fatigue. Also the extreme pain i have during sex. He decided that he thought i had endometriosis but couldnt fully diagnose unless they done a endometrial biopsy. In the mean tome I have been perscribed medroxyprogedterone 10mg. But i still have horrible nausea and some fatigue. Curious is anyone has any advice for what to do with the nausea?

I was diagnosed with endo in 2012 when I was 13 and I am now 19. I have constant nausea, dizziness, ibs, high heart rate, erratic blood pressure (low and high) and can't seem to lose weight. I haven't been to see my gynaecologist since 2014 because I was told by other specialists that these symptoms couldn't be from endo so there wasn't any point seeing her. It has gotten to the point where I can no longer do anything and just stay home everyday because I am in too much pain and feel so sick… read more

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

My gynecologist told me that she felt a pelvic mass on a bimanual exam that suggested to her that I might have an endometrioma or more on the other side of my vaginal cuff. She also noted a polyp on the vaginal side of the cuff that might be endometriosis. Why would a transvaginal ultrasound and a CT scan find absolutely nothing, when I was in so much pain that I needed hydromorphone in the ER to control it?

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

Has anyone on this forum been diagnosed with Thoracic endometriosis syndrome? It looks like I may have this. I'd love to understand other peoples' stories/how we can better educate ourselves. Thx 🙏🏿