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A MyEndometriosisTeam Member asked a question 💭
Detroit, MI

Hello everyone,

I just had laparoscopic surgery 2/22 and my gynecologist has found adhesion/ endo in my uterus. Some were able to be removed however there are still smaller ones still there. The gynecologist told my parents I would need the shot I’m guessing (lupron) which will put me in a menopause state. My question is what treatments have you sought out? Is the shot worth it or should I look into alternatives I’m already on birth control and have been for years.

February 28, 2019
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A MyEndometriosisTeam Member

Lupron is awful. Made me feel like I was dying. It made me worse before better and "better" was still awful. I wouldn't give Lupron to my worst enemy.

Treatments I have tried: birth control: necon, low estrin, ortho evra patch. Lupron depot plus add back, Depo-Provera shots, aygestin, necon + femara, aygestin + femara. Currently just on aygestin.

March 1, 2019
A MyEndometriosisTeam Member

Itlwhitebtrfly

Thank you so much for your input.

March 1, 2019
A MyEndometriosisTeam Member

I want to add though, just because a lot of people report negative side effects taking Lupron (like I did), doesn't mean you will too. It could work for you. Everyone is different. When I took Lupron I had to take add back therapy daily, plus 1500mg calcium and vitamin D (I don't remember how much vit D).

March 1, 2019
A MyEndometriosisTeam Member

I refused to take Lupron because of all the horror stories i heard . I suffered until i couldn’t take it anymore and had total open hysterectomy 2/6/2019 .

March 1, 2019
A MyEndometriosisTeam Member

Kjbartholomew,

Hopefully i’m responding correctly. I have mild pain by my belly button after the surgery nothing i think isn’t normal post surgery. Right i don’t get the full story until my post op appt on the 12th of march.

Did you call your doctor yet to give him/her updates?

March 1, 2019

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