9 steps to processing your endometriosis diagnosis and endometriosis | MyEndometriosisTeam

Connect with others who understand.

sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "9 steps to processing your endometriosis diagnosis"

reset
Stage 4 Endometriosis Without Endometriomas Showing Up On Ultrasound
A MyEndometriosisTeam Member asked a question đź’­

Can you have stage 4 endometriosis without any endometriomas showing up on the ultrasound?

A MyEndometriosisTeam Member

Sadly, It is difficult to pick up endo on ultrasound unless the physician is REALLY skilled and knows what to look for.

Why Do We Have To Endure An Invasive Surgery To Have A 100% Confirmed Diagnosis For Endometriosis?
A MyEndometriosisTeam Member asked a question đź’­

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

•
View reactions
A MyEndometriosisTeam Member

I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.

How Did You Get Diagnosed? My Ultrasound Came Back “normal” And My Doctor Keeps Pushing Birth Control. I Know It’s More Though.
A MyEndometriosisTeam Member asked a question đź’­
A MyEndometriosisTeam Member

Also recommend getting different opinions. I've been to about 8 OBGYNs since 2016 before one finally brought up endometriosis. I wasn't diagnosed with a laparoscopy, but she considered all my… read more

What Questions Should I Ask A Surgeon At My Laparoscopy Surgery Consult?
A MyEndometriosisTeam Member asked a question đź’­

So I have a consult this Thursday for a laparoscopy the surgeon is not an endo expert surgeon but he is a gyno/MD/FACOG
He isn’t my first pick but my first pick who is an endo master surgeon can’t get me in just for a consult till October 19th. I don’t think I can’t wait that long with the constant pain I’m experiencing, if he offers surgery should I do it or wait for the best in my area???
Please help I need any advice, info, opinions?

•
View reactions
A MyEndometriosisTeam Member

Ugh! I know these choices are so difficult. The main thing I would want to know is that No One is going to use ablation to treat the endo. I didn't know that everyone doesn't do excision surgery to… read more

Haven't Had An Official Diagnosis, Kind Of Stuck With Doctors After Them Saying It Was Highly Possible. Next Step/ Suggestions?
A MyEndometriosisTeam Member asked a question đź’­

A few years ago, my doctor asked if i knew what endo was. At the time it was new to me, now I know a little more. The doctors I have gone to have said it is highly likely with my symptoms and everything that I have endo. We did ultrasounds to check for cysts. My question is what is the best plan of action next? Do I keep prying for answers? Or is it just IBS? Thanks!

A MyEndometriosisTeam Member

Laparoscopy will give you the answer you need.

Endometriosis Progressing?
A MyEndometriosisTeam Member asked a question đź’­

Hi ladies!

How do you know if your endometriosis is progressing or not?

A MyEndometriosisTeam Member

It can be hard to tell for sure if you're on something that suppresses symptoms (i.e., birth control), but for me I went through a really horrible 6-7 months where I was very sick with endo symptoms… read more

Incontinence
A MyEndometriosisTeam Member asked a question đź’­

Does anyone else have problems with endo & urine leakage? I find myself leaking wee a lot. Currently waiting on next surgery for extensive endo

A MyEndometriosisTeam Member

I have bladder issues and I have use bladder underwear and underpad on the bed

Hi! Does Anyone With Endo Experience Gastric With Excessive Gas During Period At The Same Time?
A MyEndometriosisTeam Member asked a question đź’­

Ive been having Endo for 10yrs and this is my first time experiencing terrible bloatedness and gastric..

•
View reactions
A MyEndometriosisTeam Member

I feel the same, did a laparoscopy but the bloating and pain only got worse. I just found out that the endo was not totally removed (i guess so they don't hurt other organs) but I'm guessing based on… read more

Is A Laparoscopy Surgery Worth It?
A MyEndometriosisTeam Member asked a question đź’­

After reading a lot of people’s stories on here, I’m starting to doubt getting the surgery from seeing so many women having more problems after surgery than before. I really want to be able to have a baby and I do have “simple” and “complex” ovarian cyst that go up and down in size also they said I have “endometriomas” on my ovaries through MRI at my first hospital stay last November. Im not sure if those are the ones that grew into the complex cyst I have now? I’m so confused now with all my… read more

•
View reactions
A MyEndometriosisTeam Member

I had laparoscopic ablation surgery every three-5 months for two years. I had a lot of relief for about a month or 2. which considering my situation was a big deal. After the last procedure The doctor… read more

Doubting On Visanne
A MyEndometriosisTeam Member asked a question đź’­

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

•
View reactions
A MyEndometriosisTeam Member

I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more