Hi all -- has anyone used Mirena as a first option to try and quell endometriosis flare-ups? Curious about side effects, how well it works, etc. Thanks, in advance, for any information you can provide!
Hello ladies!!
Do any of you have issues with random unexplained bruises appearing all over your body when your endo acts up?? I have them all over my arms, hands, legs, tummy and pelvic areas. Just want to know if I should be concerned or not!
I sometimes wonder if it's also tissue related and can appear in other areas.
During my period, I keep getting bruises from my thighs, legs, etc.
It actually feels like a horror movie, considering I… read more
Hello, I wanted to speak to people that have been diagnosed and how they knew it was endo. I've been going to the doctor due to lower left abdomen pain that has been going on for a year. Some days it's worse than others but when on my period the pain in my entire uterus and rectum is really extremely bad (for about 5 years now) It doesn't feel like cramps and sometimes I feel like I'm going to faint or like something is trying to come out of my because of the shooting pains but now my lower left… read more
I hope they find some answers for me when I see the surgeon. She's also an endomitriosis specialist so I'm really hoping they do everything they can to figure out what's wrong with me. I'm tired of… read more
I'm 33 and recently diagnosed stage 4 . I have 10 year old twins and am trying to add to the family. Has anyone here gotten pregnant naturally with severe endometriosis and how long did it take? Tips and hopeful words welcome!
Stress was a massive factor of me not getting pregnant because of course stress is chaning hormone levels etc. No harm for your husband to also be tested, good idea. Stay positive and believe it will… read more
Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more
I have been prescribed both in the past and haven't used either as I was concerned about the side effects, especially with Aspen-Diegnogest/Visanne but my flow is out of control and I have endo in many places included bladder and rectum so that makes it worse. I have only used Naproxen for years for the pain but I have been beyond "managing" for a long time now, especially with the flow and I have also learned/realized that this treatment plan does not actually "treat" endo which… read more
Hi how are you doing. I've been taking visanne since 2016 or was it 2019,sine my op for endometriosis and fibroid. I'm actually from durban, South Africa, I don't know why it chose roodepoort. Visanne… read more
So, I am 8 weeKS post op from my surgery to have surgical resection of endometriosis. And this surgery was for endo that returned 15 mths POST supracervical hysterectomy. I had severe endo all over again. They removed my cervical stump and all the endo. Prior to surgery my estrogen level was a 70 which some docs say is good for menopause. Some docs don't. My estrogen level had been around 65 to 70 for the entire 15 mths post hysterectomy. Well....now...8 weeks after this last surgery, my… read more
But some women do HRT after menapause because of the drop.
After going to an MRI my doctor confirmed the presence of a chocolate cyst around 5.5cm (left ovary) and one of 2cm (right ovary). He decided to give me the combined pills (Levonorgestrel/ethinylestradiol; 0.10mg/0.02mg) and he said to me that I should come back in a month to see if the cyst shrank or not, if not then he would recommend a surgery for removing only the big cyst.
I started taking the pills on the first day of my period and 29 days after I was still bleeding (non stop), on the… read more
@A MyEndometriosisTeam Member - YAAAY!! I hope you're able to see one soon! And glad to help!
Im on them now and just want to know what poeple experienced after they stopped the injections. Xx
*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**
Is that Lupron that makes your body believe that you and perimenopause is that that has so many things done that I have no idea at this point. I’m just going back in time.