Looking for some guidance about dos and donts that can help to make pain less. What should I avoid? What should I eat more of?

Hi ladies. I hope that you're all coping well with your endo & that you're feeling peaceful (although probably unlikely). I'm wondering, I have a Youtube channel & am wanting to put up a video about what endo is & to share my journey with endo (to promote awareness of this condition, as well as to get us talking & sharing). What I'd like to know is if any of you would happen to have any advice or interesting tips that I could include in the video for those who may be watching? This could… read more

I am 38 and have the worst of the worst symptoms, pain, heavy bleeding, depression ect. I just started the mini pill to help ease theses symptoms. I am missing work and life. Several yrs ago I tried it and bled and cramped for 2 months. I am desperate and trying it again. I have migraine with aura so I can't tolerate reg BC at all.

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

I had my first diagnostic laparoscopy surgery just over two weeks ago, 13th Oct. physically I feel well enough to try to get back to a normal routine and work. However after suffering my symptoms of endo for nearly 10years, with no doctors listening to me. Mentally I'm struggling. I'm relieved to find out I do have endometriosis, and I wasn't "crazy". But now it's hit me emotionally. I had my first day back in on Monday. I found it very tough. I'm a veterinary nurse, so I can't really take it… read more

My gynecologist told me that she felt a pelvic mass on a bimanual exam that suggested to her that I might have an endometrioma or more on the other side of my vaginal cuff. She also noted a polyp on the vaginal side of the cuff that might be endometriosis. Why would a transvaginal ultrasound and a CT scan find absolutely nothing, when I was in so much pain that I needed hydromorphone in the ER to control it?

Im on them now and just want to know what poeple experienced after they stopped the injections. Xx

*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

Hello. Anyone menopausal and still having pain? My doctor is convinced that at 51 my endo pain will decline soon and took me off my Norethindrone daily maintenance and Mirena IUD. Crashed and had severe cramps for 3 days. Still having pain in my right side. Hoping the doctor is right, but after 30 years of dealing with pain (post a confirming laparascopy surgery in my 20s), I still feel dismissed and unheard. Thank you.