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I had an partial hysterectomy on 2-2 this year( I still have my ovarys and they removed endometrial tissue) but I took off my hormonal patch last week and now I have my ‘menstruation’ well it still hurts in my belly and the area around my anus. Even tho they told me they removed all the endometrial tissue successfully I don’t really believe it. I also have a menstrual migraine. Any tips? Specially for the migraine that makes everything a lot worse😅. And what was your experience after surgery and… read more
I recommend wrapping your heatpad around your feet (or putting your feet in warm water but I find the heatpad easier) and eating something that has a small amount of caffeine when you feel the… read more
I'm relatively good at identifying when it's a migraine but esp when I'm approaching my period I can get headaches that last hours or a whole day and don't feel like migraines.
I suffered horribly during puberty, i was even hospitalized at one point. I was told they were hormonal and to expect the same thing during big events like pregnancy and menopause. They don't effect… read more
1- I drink 6 20 oz glasses of water daily.
I’ve have headache my entire life. Is that related to endo? (No specialists-
neuro, endocrine, gynae, gi) could find anything wrong. Currently I cannot afford insurance but apparently make Barely too much for financial assistance although we are drowning in bills despite our frugality. When would you personally feel enough cause for concern? It has been 8 days of intense headache and fatigue+photosensitivity. For obvious reasons I have a strong… read more
How many of you out there suffer from migraines as well as your endometriosis, is it crazy to think that there's a link between the two? I have migraines several times a month... Since about the time I reached puberty. Just wondering how many out there have this experience too???
My entire life, haven't been able to work in a month because of it, hoping this second Botox injection will make a difference. I had one so bad it mocked a stroke and I ended up in the ER
Ive been having headaches or maybe this is migraine already when i started taking my dienogest pills RILIZ
I get migraines two days and one day prior to my period and then on the first 2 or three days also. I don’t have big vision changes then but I have to go to bed early to avoid overall sickness from… read more
Been having headaches lately. Im suspecting its the dienogest RILIZ im taking. Anybody having headaches too?
Birth control can cause headaches
I get terrible migraines when my endo pains are extra bad, which is now most of the time. So does anyone else get bad migraines with endo pain?
@A MyEndometriosisTeam Member I am right there with you - bad migraines with bad endo pain. If you have ideas to relieve the pain, I would be glad to hear suggestions. I've tried Aleve, heating… read more
I was put on progesterone pills in 2015 for endo. I had to get off the pills because I got a chronic migraine that lasted 3 months. Around the same time I was diagnosed with POTS and Sjogrens (an autoimmune disorder). Now, I get migraines multiple times a week.
Dr. wants to do Mirena IUD. I've never had an IUD.
Can anyone with migraines that has used mirena tell me if migraines got worse?
Can anyone with autoimmune disorders that has used mirena tell me if it caused any issues?
Its progesterone only bc as well so I would think that it may have the same effect that the norethindrone did since it was the same hormone involved. Estrogen triggers mine I cannot take any thing… read more
