I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyone… read more
Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more
My gynecologist told me that she felt a pelvic mass on a bimanual exam that suggested to her that I might have an endometrioma or more on the other side of my vaginal cuff. She also noted a polyp on the vaginal side of the cuff that might be endometriosis. Why would a transvaginal ultrasound and a CT scan find absolutely nothing, when I was in so much pain that I needed hydromorphone in the ER to control it?
Sorry you are still experiencing pain after all you’ve been through, it feels hopeless at times. Maybe the doctor who did your pelvic exam was incorrect….or maybe you have a lesion where they can’t… read more
New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more
I had a hysterectomy in June of 2022 and honestly I don’t recall the specifics of when exactly I was able to move around, but I do remember I used my mom’s walker the first month and then as I was… read more
My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more
I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.
I had my second laparoscopy on Feb 2nd. Ever since I have constant boughts of nausea. It almost seems like everything I eat and drink makes me extremely sick. I've had a couple nights of violent vomiting but other than that it's typically nausea and pain with pressure on my stomach. Anyone experience something similar? I do have a gluten sensitivity but I have not had any issues around that. I've been seriously considering a mostly vegetarian diet due to this...
Try using CBD oils or other holistic medicines! There are tons of websites you can order these types of natural, homeopethic medicines if you don’t have a place in person. Good luck to you!! I’ve been… read more
Hi everyone, I would like to know if there are any cases among you with stage 4 endometriosis, bilateral endometriomas with kissing ovaries and pelvic adhesions, who have achieved a spontaneous pregnancy or through IVF ? I'm just really worried :(
Has anyone on this forum been diagnosed with Thoracic endometriosis syndrome? It looks like I may have this. I'd love to understand other peoples' stories/how we can better educate ourselves. Thx 🙏🏿
Endometriosis is a reproductive life disease. Most of the lesions regress in the postmenoupasal period. Endometriosis mostly depend the estrogen production. When te estrogen production decreases in a… read more
I have several painful conditions, endometriosis being one of them, my pain is so severe and now been hospitalized twice due to small bowel obstruction. Also they found I have an autoimmune type of esophagitis. My insides are constantly inflamed and my cysts are very painful especially before and during my period and it’s getting worse every month, last two periods I ended up in the ER. I can barley eat due to all the stomach issues and the fatigue is real. Any advice for getting disability??
Have you seen an arthritis, autoimmune doc. Had blood work ran? That is your first step to getting answers, what about a neurologist as well? Those 2 will be the most important, besides your… read more