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Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more
Thank you x
Hi everyone, I am 51 and have been diagnosed endo 4 for many years, having ovarian cysts on both side, they are about 4 and 5 cm. I tried IUD before but only made it worse, so that was taken out. Lately the pain has been increased so I am revisit the idea of surgery. My doctor suggested me to remove both of my cysts and overies, but I done some research, overies are important even I am perimanopause. But only removing the cysts would be very difficult as my condition with Endo, so it won't be a… read more
Hi, I have similar situation. I have been diagnosed endo since 2019 and have cysts about 3 to 4cm. Taking medication but seems did not help much. Lately feeling chest and breast pain. So seeing… read more
Has anyone had excision surgery done by Robert Furr? I have a phone consult with him on Wednesday. He was listed on Nancy Nook's page. Thanks.
I am told he is fantastic. I know he is vetted and follows the footsteps of Dr. CY Liu whose daughter is also an excision specialist.
He left Chattanooga. I will be finding out where he is now.
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyone… read more
Looking for some guidance about dos and donts that can help to make pain less. What should I avoid? What should I eat more of?
Gluten. Red meat. Dairy. Sugar. High processed foods. Alcohol. Caffeine. Smoking. can all make endo worse 😞
When I get sick I get it much worse and longer than most people
Yes! I hate getting sick because it always seems to hit me harder than people around me who get sick. I grew up with a mother who has a compromised immune system so I always suspected I was just… read more
New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more
I had a hysterectomy in June of 2022 and honestly I don’t recall the specifics of when exactly I was able to move around, but I do remember I used my mom’s walker the first month and then as I was… read more
When I emailed my gynae to ask why the bleeding (three weeks ago I was still bleeding ) hasn’t stopped another doctor in the practice told me that spotting and discharge is normal it will take a… read more
