Hello everyone
I have sever Endo and I Had 3 times Laparoscopy I was on medication name Orilissa for 1 year , I am 40
Have no kids and no plan to have kid. Any one recommending birth control . I have cramps and pain constantly and just find out that I have on right Ovaries Cyst . Hopefully , birth control can reduce my pain and cyst .
I honestly wish they didn’t offer the birth control they did for me several years ago and instead of it shrinking my cyst doubled in size 8cm when they originally found it at the ER cause I was in so… read more
Hi
I was diagnosed with endo at the beginning of this year and had op shortly after. My consultant wanted me to have mirena coil but after reading up on side effects and stories from friends and on forums I chose not to have it and try pill. I have tried 2 different ones so far neither of which were any good for me with the latter making my mood swings intolerable for everyone around me. I have been offered a lower dose pill today which I am going to try but I was told of this was no good then… read more
Thank you! Sorry you had a rough time with it. Hope everything gets sorted for you too x
I was diagnosed with endometriosis in January 2016 after undergoing a larapscopy. I was told very little following the surgery about how much was found and where other they had removed it from my right ovary which was double the size of my left one. I was pain free for a couple of months but then the pain started coming back and pain wise I am back to square one with pain on my left being just as bad as it had been on my right (before op the right ovary was a lot more painful). I had an internal… read more
Good luck! :)
Is anybody having this feeling too?
It’s helped a lot for me
I am on day 3 of my bleed and thankfully am feeling better today, but Wednesday was ROUGH. It was the worst flare I've had in a while tbh...wondering if anyone else is experiencing more pain right now. Perhaps there is a connection with the intense eclipse season and Mercury Rx...
This month has been so weird! I had 2 horrible days Thursday and Friday when I was supposed to start bleeding…but never started! This has happened before where I’m a week late but not in a long time… read more
I have been on visanne for 2 years. The last 2 days in the mornings I have had the dark brownish discharge and today I'm getting some bad cramping.
Im on visanne on my 5th month and having moderate to heavy bleed and cramps for a week. Is visanne not working anymore?
This is my first time here and first post so bear with me. Since this past January, my endometriosis has reached new levels including chronic lower back pain, nausea and now panic attacks and anxiety. I never dealt with panic attacks or anxiety before, wondering if it’s endo related? I really feel the panic attacks (most at night) around ovulation and right before my period starts. My doctor put me on fluoxetine 20mg and it’s helped a bit but not enough to stop the attacks. Maybe I need a higher… read more
@A MyEndometriosisTeam Member I'm so sorry you are suffering so deeply. I also have suffered with Panic Disorder and I understand how scary this is. Some things that help me are movement, meditation… read more
Details included (sorry) .. urgent! I had my period a week ago & in its last 2 days I felt some swelling around my vaginal opening and the labia around it, with some irritation and pain whenever I wanna shower or anything.. the period is over but the pain and swelling are still there so I decided to check what it looks like down there and I was terrified; my vaginal opening is all white, like thick white thing that seemed like discharge but isn't discharge, like infection or something, and… read more
It sounded like thrush, a candida infection. Better book to see a gp for a proper checkup
Hi!
I was wondering if anyone else got back pain during ovulation. It kind of feels like sciatic pain in my lower back, i’ll get twinges once in a while and spasm when lying flat. I usually get bad back pain on my period but since I got laparoscopy 2 1/2 months ago I notice it during ovulation. I still am getting ovulation cramps/ soreness too. Can anyone else relate?
I also forgot to mention, it does grow on the stomach, lungs, heart, chest, even the brain. I plan to prove this scattered white mass on my brain is endometriosis, no one. No one can tell me what it… read more
How long were you on meds before your doctor decided to do a laparoscopy? My gyn wants to put me on orlissa or bc for 6months to a year before doing a laparoscopy? Do you find that to be typical?
My daughter was at gynae today in Mullingar Ireland. We were told to take oral contraceptive 3 months witout a break...break then back 3 months without a break. This is until she has an ultrasound… read more