I've had it 4 months. I have an appt on Thursday. My doc wanted me to wait 3-6 months to give it a chance. I'm getting more new symptoms. I'm in pain every day. I feel like my insides and expanding and stretching apart. I currently don't get prescribed any pain meds. I can get through work and that's about it.

This is kind of my last stop. I can't have estrogen based BC due to risk of stroke. I've tried every progesterone based option except the implant, which seems pointless to me since all… read more

I have been on Visanne 2mg for 6 weeks. The spotting/light bleeding started 10 days after I was on the pill, and until today, the bleeding never stopped. It got a bit heavier starting at week 5: bright red blood with some small clots, but much less bleeding than a regular period. From time to time, I got cramps and I took an Advil, then I can carry on without any problem. But for the last 3-4 days, my pain is getting much much worse. At 2AM I woke up by some very sharp spasms in my tail bone… read more

So I have a few days left on my pill and had surgery a week and a half ago. Yesterday I started bleeding heavier and having some pretty intense cramps, which could also be being a bit off about taking my birth control since I’m not having the best time recovering from surgery. I decided to just let myself have my period, I’m on seasonique so it’s been a while anyway and I figured my body could use it. I’m still in a good amount of pain and I have a pretty high pain tolerance so it’s been rough… read more

Just had my laparoscopy done 2 days ago and the doctor wants me to start to take progesterone only pill for 8 weeks continuously until I see him. I had spotting after I started the 1st pill last night. I don't really know the bleeding is from the laparoscopy or the pill....anyone has similar experience to share?

Hi guys, just wondering if anyone has any advice on how to deal with the side effect of birth control. i have been place on several different types of pill ( both combine and progesterone only), to help with suspected endometriosis. None of the birth control pills i have tired seem to be helping improve the pain and other symptoms that come long with my period. my period have just become way more frequent to the point where i am having them every other week. Discussed my concerns over this… read more

I've had sciatica pain and foot pain for about 4 years. I have told my doctor who did my 2 surgeries and he said it could be the endometriosis, but when he did the laparoscopy, he didnt see anything in the abdomen that was pressuring any nerves. I do have a mesh in my lower back and abdomen so that way the endo doesnt grow. I have tried all sorts of physical therapy, bought new shoes
/insoles, and nothing has worked. I get tingling on both my legs from my lower back/glutes and I get… read more

I have bleeding for more than 3 weeks now and there's blood clot coming out for 10days now.. My 1st ob-gyne told me to continue taking vissane and the 2nd ob-gyne told me to stop and take a combined birth control pills. Now I'm confused.. I'm painfree now because of vissane but this bleeding frustrates and worries me.

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more