I haven't been diagnosed, but as I said I am very sure I have it. My doctor refuses to do testing even though I have
1 - had a c-section which caused a major amount of tissue
2- it runs in my immideate family
3- I have constant pelvic pain which radiates into sharp pains at least 3 times a day.
4- I have had a "cyst" on my ovaries for over 6 months now
5- I can't get pregnant.
I am very concerned about this as I know how much my family is in pain because of this and how many… read more
I would recommend finding a new doctor. Unfortunately, you may have to meet several of them before you find the one who understands this disease.When I moved from FL to NC for a few years, I went to… read more
So when I was younger my oain was always the same, concentrated on the left side, really sharp, and woulf radiate out and that's just how my pain always presented. As I've gotten older and my pain has changed and now on top of thd leftside pain I'll also feel achey all over, or I'll have pain that follows my spine. Does anyone else experience bad back/neck pain?
My back kills most the time and my hips x
I am 19 years old, and I was diagnosed when I was 14 and my endo has only gotten worse along with cysts growing in my ovaries. I dropped out of school to homeschool because the pain and sickness were keeping me home too often. I have tried many types of birth control and over the counter pain relievers. Nothing has helped, but my doctors refuse to do anything because I'm too young. I was wondering if anyone else was in the same situation or know someone the doctors refused removal because of… read more
I had my first Laparoscopy at 17 but similarly to you it is thought that I have had it since I was 13/14, I think you should probably get a second opinion from a different Gyney because the first lap… read more
I try to get as much done as I can and it just never seems to be enough at times… I work full time from home which is nice but stressful most days… then I try to get what I can done around the house and run my daughter around for sports and school stuff and the more I do the more pain I have… I feel like its just never ending… 😩
Have you considered getting a blood test to check your iron and ferritin levels?it could be related to iron deficiency.
Hi ladies! I have some questions about my first lap. First off could anyone share with me any advice or experience you have for me also how long should I have to wait before my surgery is scheduled it has been a week
Don't rush going back to work, best thing is to rest. Getting in and out of bed was rough the first few days.
I have been in my relationship for 7 years due to my endometriosis it messes with Me emotionally physically mentally and I am not horny I feel bad for My man. Idk what to do, should I have sex so I don't loose him and he doesn't go cheat? Should I just decide to be single to save myself from being a victim of being hurt by cheating? 🤔 should I just deal with it and not have sex so am not in more pain than I already am? Should I get a hysterectomy let me body shut down at such a young age? 🤔 not… read more
Awww that's sweet advice Thank you.... I will have a chat with him pray the best expect the worse... sorry u going through it as well stay strong sending prayers your way 💓
Hi everyone! When I first got my period at 10 years old (10 years ago now), I had extreme pain and so went to my gynaecologist who suggested that it may be endometriosis, but due to how young I was decided against doing a laparoscopy. Over the years I have tried 3 different types of birth controls, many different pain killers, anti inflammatories, etc., and I recently had an IUD put in. The pain has gotten worse over the years (and started to include massive back cramps, leg pain, etc.) and I am… read more
Have u tried changing your diet. Look up foods that cause inflammation. I’ve cut out a lot to try help with pain and passing clots. Foods u r cut out are. Red meat. All dairy. Gluten and eggs. And… read more
Were meant to be trying for a baby in a months time, it just won’t go in and when it does I tare down there. My PTSD has been bad lately something happened to me as a child for years that relates to this issue. I don’t know weather it is that or weather my endo has got bad again (I’ve had it removed from the walls down there before) I’ve brought a set of dilators and it’s bloody painful. Just wondered if anyone’s gone through this?
Hello, I've had this issue for a while. Sex and tampons are a no go now. I've been seeing a physio at a women's clinic who recommended a perifit. It is an investment at £120. Its a vaginal exerciser… read more
Hello,
I have been trying to get pregnant for approx. 4 years. Since getting off birth control 4 years ago I've been having many negative symptoms (painful, heavy, and clotted periods, infertility issues, I am ALWAYS tired with much less energy, and more.). I have had over 8 doctors (not an exaggeration) tell me that I "likely" have endometriosis due to my symptoms BUT that they cannot diagnose me officially because they can't see anything when they've performed ultrasounds (and I have had a… read more
Yes you always have to wait but good luck on everything.
Terminal meaning there is more endo in my pelvic and abdomen than anything else. If they removed it all I'd fall apart LOL. If I were a dog I would have been put down a long time ago. Seriously though, my surgeon refuses to take any more out, the risk of damaged organs and more scar tissue and adhesions means I just have to live like this. It is also growing through and into my abdominal muscle
My pain is severe everyday and I can't look forward more than a few days in the future as I can't… read more
That's awful, I'm sorry.