I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.

I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.

Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.

Has anyone been in so much pain your legs hurt,you get super nauseous and your lower body feels weak and funny (can't explain it better)???

Hi! Would appreciate any thoughts or insights anyone has. Thank you!

Is there anything that in hindsight you wish you knew prior to surgery? Whether about the surgery itself, aftercare, questions you wish you would’ve asked the surgeon, etc.

At what point did you feel like the surgical pain was gone/at a manageable level where it wasn’t all you were thinking about?

I was wondering when I will be able to get up? I have a old dog who needs to get out early and a couple of times

As a Fellow Endo Warrior and Certified Health & Wellbeing Coach, I understand both the pain that comes from living with Endo and the value of restorative care practices. I created a soul-nourishing 8-week virtual Endometriosis Retreat that will be offered for the first time in January-February 2024. This retreat is centered around the less-addressed areas of wellbeing-the emotional, spiritual and relational aspects of living with Endo.

Living with Endometriosis invites us to start valuing… read more

Hi Endo Warriors! This is a photo of me around age 15 when I first started experiencing Endo symptoms. I remember temporarily losing my vision twice due to the pain being so bad. I remember feeling so afraid because I was suffering so much with vomiting on my period too and no one thought anything was wrong with me. When you are told there is nothing wrong with you, you stop asking for help because you feel afraid that maybe you are the one who is mistaken.

Anyways, fast forward 10+ years, and… read more

Hey! I’m trying to decide if at-home hormone testing is worth the price and reliable. I was recently diagnosed with stage 2 endometriosis after having a laparoscopic excision surgery which ended up making my symptoms a lot worse. I’ve asked my doctors about hormone testing because of my endometriosis as well as having moderate acne since I was 16 and no one will agree to order the bloodwork. I’m curious to see if I have a hormonal imbalance worsening my endo and causing acne and possibly PCOS… read more