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Top 10 Search Results for "the many years to an endometriosis diagnosis"

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Getting Enough Sleep
A MyEndometriosisTeam Member asked a question đź’­

I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.

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A MyEndometriosisTeam Member

When I get a flareup, I get about four hours asleep, so I usually take an edible and I sleep all night

Exercise Help Symptoms
A MyEndometriosisTeam Member asked a question đź’­

I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.

A MyEndometriosisTeam Member

I read in an article that doing core work is a no no due to pulling in the stomach and risking spreading the adhesions to the other side of the stomach ? It sounds logical doesnt it?

Why Do We Have To Endure An Invasive Surgery To Have A 100% Confirmed Diagnosis For Endometriosis?
A MyEndometriosisTeam Member asked a question đź’­

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

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A MyEndometriosisTeam Member

I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.

Has Anyone Had GNrH Injections?
A MyEndometriosisTeam Member asked a question đź’­

Im on them now and just want to know what poeple experienced after they stopped the injections. Xx

*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**

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A MyEndometriosisTeam Member

Is that Lupron that makes your body believe that you and perimenopause is that that has so many things done that I have no idea at this point. I’m just going back in time.

Took Dienogest & Ethinyl Estradiol For 6 Months & Just Stopped It On Wednesday Upon Doctor's Instructions. Now Am Bleeding, What's That?!
A MyEndometriosisTeam Member asked a question đź’­

Ruptured chocolate cyst on the left ovary that bled out & shrunk ... No period since I started the pill.. Is this period blood or bleeding disorder?

How Helpful Are MRI’s In Trying To Get A Diagnosis Prior To Having A Laparoscopy?
A MyEndometriosisTeam Member asked a question đź’­

Insurance would only approve a pelvic MRI that didn’t show any cysts. However, I’ve been on birth control and hormone balancers for years to help with side effects, so large cysts hopefully wouldn’t grow. What are people’s experiences with MRIs in trying to get a diagnosis?

A MyEndometriosisTeam Member

I think it’s different for everyone… I had many ultrasounds and pelvic exams, Pap smears, etc that all came back with nothing and then my primary care referred me to an endo specialist who completely… read more

Doubting On Visanne
A MyEndometriosisTeam Member asked a question đź’­

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

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A MyEndometriosisTeam Member

I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more

How Did You Get Diagnosed? My Ultrasound Came Back “normal” And My Doctor Keeps Pushing Birth Control. I Know It’s More Though.
A MyEndometriosisTeam Member asked a question đź’­
A MyEndometriosisTeam Member

Also recommend getting different opinions. I've been to about 8 OBGYNs since 2016 before one finally brought up endometriosis. I wasn't diagnosed with a laparoscopy, but she considered all my… read more

Did You Know The Surgeon You Choose To Remove Your Endo Matters?
A MyEndometriosisTeam Member asked a question đź’­

Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.

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A MyEndometriosisTeam Member

Hiya
Im waiting for a second opinon on having a hysto as prostap and add back aint working if anything its making the pain worse and im now having irreg bleeds :/ im currently on gabapentin it… read more

Does Anyone Think Endometriosis Is Possibly An Auto-immune Disease?
A MyEndometriosisTeam Member asked a question đź’­

I feel like I am going crazy. I have asked my doctors again and again to check if I have an autoimmune disease but no one takes me seriously. Well, I got bloodwork done and of course I test positive for autoimmune antibodies. But wouldn't it make sense for people with endo to have positive autoimmune antibodies? Think about it. We have uterine tissue growing in places it doesn't belong. Can't your body recognize that as foreign and start attacking it? Obviously, I'm not a doctor but it just… read more

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A MyEndometriosisTeam Member

Yep women with endimetriosis have it high.