I've had a complete hysterectomy. Nothing left, except endo apparently. Since August, the pain has returned, getting horrible for several days a month and then easing up to a constant dull ache the rest of the month. Last month, I started spotting along with the pain. I've changed my diet, cutting all sodas, processed foods, most dairy and bread. I've been drinking thyme tea, doing oil packs, using natural and homemade products. I'm not on HRT. I just don't know what to do! I'm almost hopeless… read more

I've recently done some research on Xenoestrogen free skincare/beauty products and wanted to see if anyone else has used these/ has noticed any difference from their regimes and if they can recommend some good xeno free products?

For those that aren't aware - If you are using body products with chemical toxins and hormone disrupting xeno-estrogens in them, your skin absorbs these chemicals, too. (Xenoestrogens are toxins that mimic estrogen) The problem with xenoestrogens is that they are more… read more

Hi Endo Warriors! This is a photo of me around age 15 when I first started experiencing Endo symptoms. I remember temporarily losing my vision twice due to the pain being so bad. I remember feeling so afraid because I was suffering so much with vomiting on my period too and no one thought anything was wrong with me. When you are told there is nothing wrong with you, you stop asking for help because you feel afraid that maybe you are the one who is mistaken.

Anyways, fast forward 10+ years, and… read more

As a Fellow Endo Warrior and Certified Health & Wellbeing Coach, I understand both the pain that comes from living with Endo and the value of restorative care practices. I created a soul-nourishing 8-week virtual Endometriosis Retreat that will be offered for the first time in January-February 2024. This retreat is centered around the less-addressed areas of wellbeing-the emotional, spiritual and relational aspects of living with Endo.

Living with Endometriosis invites us to start valuing… read more

I'm specifically asking women who still have their ovaries and are premonopause are not on any hormone inhibitors (like Lupron). It is so weird to me because it starting showing in my bloodwork after excision surgery and my hysterectomy (complete, not radical) that I have low estrogen levels. I figured it was my body adjusting to the excising of the endometriomas as well as maybe the removal of my tubes, but the low estrogen has continued to stay abnormally low and I am definitely experiencing… read more

I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.

In South Korea, women are entitled so a brief sick leave due to dysmenorrhea. For years many countries have been considering offering it to women employed with conditions or who are unable to work during their menstrual cycle
Many women are discouraged by the thought because we have sought for equality for so long, and the possibility that other women with little pain will abuse it. Although i agree with what they are saying very much, i would still need a few days off before/during my period… read more

I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.

Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.