What has been done about the haemorrhaging as it shown on a scan from March but I’ve only just received a letter telling me that’s what is wrong?

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

Have a left endometrioma 9cm. Am currently on Aygestin in the hopes of shrinking it somewhat before surgery in about 2 months. I
Will loose the ovary and have a hysterectomy due to
Heavy bleeding. I was diagnosed with Endo in 2003 during lap. And also did Ivf. I am fine with these procedures as I am 43 and done having kids. But I am scared to death or the surgery. Any thoughts or experience?

I've always had a lot of pain around my period (since I was 11) but was told that it was normal for a woman to be in pain and that I probably just felt more pain than others. Now on the 8th March I will be having a laparotomy to remove a 10cm cyst on my left ovary. I have been told that my ovary will also have to be removed as it looks as if the cyst has completely destroyed it. It turns out that this cyst has probably been growing since I was in my mothers womb but the doctor says it might also… read more

Hello all! This is my first post here, it’s super long and I appreciate the patience of anyone willing to read it! I’d also really appreciate any form of advice and guidance, and also wanted to see if anyone else here have had similar experiences.

I started my 1st period at 10 (I know lol), and have always had very, very heavy periods. I had all-day-long super painful lower abdominal pain + bleeding around 6 days past the end of my period in July (my period started on the 25th and should have… read more

Diagnosed with endo about six years ago, have always had heavy very painful periods but over the last few months it’s gotten much worse, can’t move my first few days, extreme bleeding (a super tampon +) every half hour to hour or so and a lot of pain going down my lower back into legs. Got an ultra sound and have a 4 cm cyst which doc says looks to be an complex endometrioma *chocolate cyst* with extensive internal echos on ultra sound which I’ve read means when you get these it means your endo… read more

Hello
It's my first time posting about this. I was told last weekend after going to emergency room with what I thought was appendicitis that I had 2 ovarian cysts and endometriosis (1 on each ovary). One is about 5cm and one is almost 8cm
I have an appointment with a gynecologist next week and I am really scared. I want kids one day, and have been using NAC and DIM supplements as well as turmeric and omega 3s in hopes that it will help shrink them or help with the pain.
Has anyone ever had… read more

Hello. Anyone menopausal and still having pain? My doctor is convinced that at 51 my endo pain will decline soon and took me off my Norethindrone daily maintenance and Mirena IUD. Crashed and had severe cramps for 3 days. Still having pain in my right side. Hoping the doctor is right, but after 30 years of dealing with pain (post a confirming laparascopy surgery in my 20s), I still feel dismissed and unheard. Thank you.

Does anyone else have problems with endo & urine leakage? I find myself leaking wee a lot. Currently waiting on next surgery for extensive endo